{"id":3343,"date":"2017-11-11T05:23:00","date_gmt":"2017-11-11T05:23:00","guid":{"rendered":"https:\/\/sindromecharge.es\/index.php\/2017\/11\/11\/gracias-por-participar-en-nuestras-asambleas-autonomicas\/"},"modified":"2017-11-11T05:23:00","modified_gmt":"2017-11-11T05:23:00","slug":"gracias-por-participar-en-nuestras-asambleas-autonomicas","status":"publish","type":"post","link":"https:\/\/sindromecharge.es\/index.php\/2017\/11\/11\/gracias-por-participar-en-nuestras-asambleas-autonomicas\/","title":{"rendered":"\u00a1Gracias por participar en nuestras asambleas auton\u00f3micas!"},"content":{"rendered":"

Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: <\/p>\n

El papel de las asociaciones ha sido y es determinante en la pol\u00edtica sociosanitaria de ER. Juntos, estamos avanzando en aspectos tan fundamentales como la inclusi\u00f3n educativa o la formaci\u00f3n de los profesionales que valoran la discapacidad y la dependencia, premisas que poco a poco van haci\u00e9ndose hueco en la administraci\u00f3n auton\u00f3mica. Para continuar trabajando en esta l\u00ednea, hemos celebrado nuestras asambleas auton\u00f3micas durante el mes de noviembre. <\/p>\n

El papel de las asociaciones toma especial importancia en las autonom\u00edas, ya que \u00abprecisamente, la provisi\u00f3n de servicios sanitarios son responsabilidad de las Comunidades de forma que, son \u00e9stas las que, si no disponen de los recursos adecuados, derivan a los pacientes a otra Comunidad o fuera del Sistema Nacional de Salud\u00bb recuerda Carri\u00f3n.<\/p>\n

Esto ha permitido que la perspectiva del paciente dentro de la pol\u00edtica sanitaria \u00abhaya ido integr\u00e1ndose en el impulso medidas capaces de dar respuesta a los mismos problemas que plantean\u00bb. Con estas palabras, enlaza Carri\u00f3n con los planes auton\u00f3micos de ER de \u00abAndaluc\u00eda, Extremadura, Madrid y Murcia coincidiendo, adem\u00e1s, con 4 de las 7 delegaciones de FEDER. Adem\u00e1s, todas ellas representan al colectivo en las diferentes comisiones y grupos de trabajo auton\u00f3micos junto a las \u00e1reas de salud y servicios sociales\u00bb resume.<\/p>\n

Asimismo, \u00abel papel de las asociaciones ha sido determinante en la pol\u00edtica social, permiti\u00e9ndonos avanzar en aspectos tan fundamentales como la inclusi\u00f3n educativa o la formaci\u00f3n de los profesionales que valoran la discapacidad y la dependencia, premisas que poco a poco van haci\u00e9ndose hueco en la administraci\u00f3n auton\u00f3mica\u00bb puntualiza Carri\u00f3n.<\/p>\n

Fundaci\u00f3n Montemadrid, Boehringer Ingelheim, Orphan Europe, Obra Social ‘La Caixa’, Kyowa Kirin, Bankia, ARC-Racing, Incyte y el Colegio Oficial de Odont\u00f3logos y Estomat\u00f3logos de la 1\u00aa Regi\u00f3n (COEM) hacen posible el desarrollo de estos mecanismos de participaci\u00f3n.<\/p>\n

\u00daltima actualizaci\u00f3n: 13\/11\/2017.<\/p>\n

 <\/p>\n

Fuente: FEDER \u00a1Gracias por participar en nuestras asambleas auton\u00f3micas!<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: El papel de las asociaciones ha sido y es determinante en la pol\u00edtica sociosanitaria de ER. Juntos, estamos avanzando en aspectos tan fundamentales como la inclusi\u00f3n educativa o la formaci\u00f3n de los profesionales que valoran la discapacidad y la dependencia, premisas que poco […]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[8],"tags":[36],"class_list":["post-3343","post","type-post","status-publish","format-standard","hentry","category-noticias","tag-enfermedades-raras"],"yoast_head":"\n\u00a1Gracias por participar en nuestras asambleas auton\u00f3micas! - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/sindromecharge.es\/index.php\/2017\/11\/11\/gracias-por-participar-en-nuestras-asambleas-autonomicas\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"\u00a1Gracias por participar en nuestras asambleas auton\u00f3micas! - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\" \/>\n<meta property=\"og:description\" content=\"Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: El papel de las asociaciones ha sido y es determinante en la pol\u00edtica sociosanitaria de ER. 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