{"id":3165,"date":"2017-09-19T04:21:40","date_gmt":"2017-09-19T04:21:40","guid":{"rendered":"https:\/\/sindromecharge.es\/index.php\/2017\/09\/19\/nos-adherimos-al-dia-nacional-del-sarcoma\/"},"modified":"2017-09-19T04:21:40","modified_gmt":"2017-09-19T04:21:40","slug":"nos-adherimos-al-dia-nacional-del-sarcoma","status":"publish","type":"post","link":"https:\/\/sindromecharge.es\/index.php\/2017\/09\/19\/nos-adherimos-al-dia-nacional-del-sarcoma\/","title":{"rendered":"Nos adherimos al D\u00eda Nacional del Sarcoma"},"content":{"rendered":"<p>Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: <\/p>\n<p>&nbsp;<\/p>\n<p>El 20 de septiembre se conmemora el D\u00eda Nacional del Sarcoma en Espa\u00f1a y desde FEDER nos sumamos a esta jornada para mostrar nuestro apoyo hacia todas las personas que conviven con este tipo de c\u00e1ncer.<\/p>\n<p>Un sarcoma es un tumor maligno que surge en los huesos o en los tejidos blandos del organismo, que conforman el sistema muscoesquel\u00e9tico o los encargados de sostener diferentes \u00f3rganos, como m\u00fasculos, grasa, tendones o la pared de los vasos sangu\u00edneos. S\u00f3lo el 1 % de los c\u00e1nceres son sarcomas y se diagnostica un sarcoma a entre 1 y 10 personas por cada 100.000. Adem\u00e1s, la Organizaci\u00f3n Mundial de la Salud reconoce m\u00e1s de 150 subtipos de sarcomas, por lo que su diagn\u00f3stico es dificultoso.<\/p>\n<p>El Presidente de nuestra Federaci\u00f3n y Fundaci\u00f3n, Juan Carri\u00f3n incide en la importancia \u201cde divulgar entre la poblaci\u00f3n informaci\u00f3n sobre el Sarcoma y sobre sus s\u00edntomas para hacer posible un diagn\u00f3stico temprano de la enfermedad y mejorar la calidad de vida de estos pacientes\u201d.<\/p>\n<p>En este marco, queremos poner en valor el trabajo que llevan a cabo la Asociaci\u00f3n Espa\u00f1ola de Afectados por Sarcoma (AEAS) y la Fundaci\u00f3n Mari Paz Jim\u00e9nez Casado (FMPJC) en su lucha por ayudar a las personas que conviven con Sarcoma, orient\u00e1ndoles a los profesionales especialistas en es este tipo de c\u00e1ncer y ofreci\u00e9ndoles informaci\u00f3n sobre investigaci\u00f3n o tratamientos.<\/p>\n<h3>#1decada20mil<\/h3>\n<p>La campa\u00f1a #1decada20mil visibiliza y conciencia a la sociedad sobre el Sarcoma de Tejidos Blandos (STB), tumores poco frecuentes que representan el 0,5 % de los cancer\u00edgenos y de los que existen m\u00e1s de 50 subtipos. Entre los m\u00e1s frecuentes se encuentran el sarcoma pleom\u00f3rfico no diferenciado, el liposarcoma y el leiomiosarcoma.<\/p>\n<p>La Fundaci\u00f3n Mari Paz Jim\u00e9nez Casado, la Asociaci\u00f3n Espa\u00f1ola de Afectados por Sarcomas (AEAS), el Grupo Espa\u00f1ol de Investigaci\u00f3n en Sarcomas (GEIS) y la farmac\u00e9utica Lilly han son las promotoras de esta iniciativa, que tambi\u00e9n pretende potenciar el papel de los profesionales expertos en sarcoma, incentivar su formaci\u00f3n y buscar la implicaci\u00f3n del conjunto la sociedad en esta causa.<\/p>\n<p>La causa que provoca la mayor parte de los sarcomas es desconocida, aunque algunos pueden estar asociados a diferentes factores de riesgo, como la radioterapia, la gen\u00e9tica o las infecciones v\u00edricas.<\/p>\n<p>Estos pacientes sufren riesgo de diagn\u00f3stico tard\u00edo o err\u00f3neo, ya que supone un alto coste para el sistema sanitario. Con lo que es dif\u00edcil que los profesionales obtengan formaci\u00f3n especializada en esta materia, as\u00ed que el tratamiento es muy complicado.<\/p>\n<p>Se puede visualizar esta campa\u00f1a aqu\u00ed: <a href=\"http:\/\/www.1decada20mil.com\/\">http:\/\/www.1decada20mil.com\/<\/a><a href=\"http:\/\/www.1decada20mil.com\/\"><\/a><\/p>\n<p style=\"text-align: right\">\u00daltima actualizaci\u00f3n: 19\/09\/2017.<\/p>\n<p>&nbsp;<\/p>\n<p>Fuente: FEDER <a href=\"https:\/\/enfermedades-raras.org\/index.php\/actualidad\/noticias-eventos\/2-feder\/9047-nos-adherimos-al-d%C3%ADa-nacional-del-sarcoma\" target=\"_blank\">Nos adherimos al D\u00eda Nacional del Sarcoma<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: &nbsp; El 20 de septiembre se conmemora el D\u00eda Nacional del Sarcoma en Espa\u00f1a y desde FEDER nos sumamos a esta jornada para mostrar nuestro apoyo hacia todas las personas que conviven con este tipo de c\u00e1ncer. Un sarcoma es un tumor maligno [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[8],"tags":[36],"class_list":["post-3165","post","type-post","status-publish","format-standard","hentry","category-noticias","tag-enfermedades-raras"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.2 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Nos adherimos al D\u00eda Nacional del Sarcoma - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/sindromecharge.es\/index.php\/2017\/09\/19\/nos-adherimos-al-dia-nacional-del-sarcoma\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Nos adherimos al D\u00eda Nacional del Sarcoma - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\" \/>\n<meta property=\"og:description\" content=\"Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: &nbsp; El 20 de septiembre se conmemora el D\u00eda Nacional del Sarcoma en Espa\u00f1a y desde FEDER nos sumamos a esta jornada para mostrar nuestro apoyo hacia todas las personas que conviven con este tipo de c\u00e1ncer. 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