{"id":3126,"date":"2017-09-05T06:56:54","date_gmt":"2017-09-05T06:56:54","guid":{"rendered":"https:\/\/sindromecharge.es\/index.php\/2017\/09\/05\/inauguramos-una-jornada-sobre-er-respiratorias-en-barcelona\/"},"modified":"2017-09-05T06:56:54","modified_gmt":"2017-09-05T06:56:54","slug":"inauguramos-una-jornada-sobre-er-respiratorias-en-barcelona","status":"publish","type":"post","link":"https:\/\/sindromecharge.es\/index.php\/2017\/09\/05\/inauguramos-una-jornada-sobre-er-respiratorias-en-barcelona\/","title":{"rendered":"Inauguramos una jornada sobre ER respiratorias en Barcelona"},"content":{"rendered":"<p>Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: <\/p>\n<p><p>El 20 de septiembre se celebra en Barcelona una jornada dedicada a las enfermedades raras (ER) respiratorias en la que la familia FEDER, la Federaci\u00f3n Espa\u00f1ola de Enfermedades Raras, estar\u00e1 representada por Jordi Cruz, su Delegado en Catalu\u00f1a. <\/p>\n<p>La cita, que tendr\u00e1 lugar en el Hospital de la Santa Creu i Sant Pau, se enmarca en la Semana Internacional de la Fibrosis Pulmonar Idiop\u00e1tica que este a\u00f1o tendr\u00e1 lugar entre los d\u00edas 16 y 24 de septiembre. Junto a ella, al grupo de enfermedades raras respiratorias se unen la Fibrosis Qu\u00edstica, la Linfangioleiomiomatosis, la Histiocitosis de Celulas de Langerhans, la Hipertensi\u00f3n Arterial o Alfa 1.<\/p>\n<p>La jornada barcelonesa abre su programa a todas ellas con el objetivo de crear un espacio de trabajo entre pacientes y profesionales sanitarios. El fin es que juntos puedan analizar las necesidades de investigaci\u00f3n y mejorar en el conocimiento que de ellas se tiene.<\/p>\n<p>Para ello, la cita se divide en dos: por la ma\u00f1ana, se desarrollar\u00e1n ponencias de la mano de pacientes y especialistas de toda Catalu\u00f1a; por la tarde, se desarrollar\u00e1n talleres multidisciplinares en paralelo. Ambas \u00e1reas compartir\u00e1n temas comunes que unen a todas las ER respiratorias: diagn\u00f3stico, consejo gen\u00e9tico, tratamiento, trasplante e investigaci\u00f3n b\u00e1sica y cl\u00ednica, entre otros.<\/p>\n<h3>Inscripciones gratuitas<\/h3>\n<p>Los interesados en participar pueden inscribirse de forma gratuita <span style=\"text-decoration: underline\"><a href=\"http:\/\/www.malaltiesminoritaries.org\/portal1\/reserva_acto_ficha.asp?event_id=194\" target=\"_blank\">v\u00eda online<\/a><\/span>, indicando en qu\u00e9 sesi\u00f3n de la tarde est\u00e1 interesado en asistir. Las personas que necesiten int\u00e9rprete en lenguaje de signos, pueden indicarlo al confirmar la asistencia.<\/p>\n<p style=\"text-align: right\">\u00daltima actualizaci\u00f3n: 05\/09\/2017.<\/p>\n<\/p>\n<p>Fuente: FEDER <a href=\"https:\/\/enfermedades-raras.org\/index.php\/actualidad\/noticias-eventos\/2-feder\/8929-inauguramos-una-jornada-sobre-er-respiratorias-en-barcelona\" target=\"_blank\">Inauguramos una jornada sobre ER respiratorias en Barcelona<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: El 20 de septiembre se celebra en Barcelona una jornada dedicada a las enfermedades raras (ER) respiratorias en la que la familia FEDER, la Federaci\u00f3n Espa\u00f1ola de Enfermedades Raras, estar\u00e1 representada por Jordi Cruz, su Delegado en Catalu\u00f1a. La cita, que tendr\u00e1 lugar [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[8],"tags":[36],"class_list":["post-3126","post","type-post","status-publish","format-standard","hentry","category-noticias","tag-enfermedades-raras"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.2 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Inauguramos una jornada sobre ER respiratorias en Barcelona - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/sindromecharge.es\/index.php\/2017\/09\/05\/inauguramos-una-jornada-sobre-er-respiratorias-en-barcelona\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Inauguramos una jornada sobre ER respiratorias en Barcelona - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\" \/>\n<meta property=\"og:description\" content=\"Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: El 20 de septiembre se celebra en Barcelona una jornada dedicada a las enfermedades raras (ER) respiratorias en la que la familia FEDER, la Federaci\u00f3n Espa\u00f1ola de Enfermedades Raras, estar\u00e1 representada por Jordi Cruz, su Delegado en Catalu\u00f1a. La cita, que tendr\u00e1 lugar [&hellip;]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/sindromecharge.es\/index.php\/2017\/09\/05\/inauguramos-una-jornada-sobre-er-respiratorias-en-barcelona\/\" \/>\n<meta property=\"og:site_name\" content=\"Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/asociacionsindromecharge\" \/>\n<meta property=\"article:published_time\" content=\"2017-09-05T06:56:54+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/sindromecharge.es\/wp-content\/uploads\/2013\/09\/logodecharge300x98.png\" \/>\n\t<meta property=\"og:image:width\" content=\"300\" \/>\n\t<meta property=\"og:image:height\" content=\"98\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"Charge\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@sindromecharge\" \/>\n<meta name=\"twitter:site\" content=\"@sindromecharge\" \/>\n<meta name=\"twitter:label1\" content=\"Escrito por\" \/>\n\t<meta name=\"twitter:data1\" content=\"Charge\" \/>\n\t<meta name=\"twitter:label2\" content=\"Tiempo de lectura\" \/>\n\t<meta name=\"twitter:data2\" content=\"1 minuto\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2017\\\/09\\\/05\\\/inauguramos-una-jornada-sobre-er-respiratorias-en-barcelona\\\/#article\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2017\\\/09\\\/05\\\/inauguramos-una-jornada-sobre-er-respiratorias-en-barcelona\\\/\"},\"author\":{\"name\":\"Charge\",\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/#\\\/schema\\\/person\\\/39a60ebe0a2b4d5a11179701e336b039\"},\"headline\":\"Inauguramos una jornada sobre ER respiratorias en Barcelona\",\"datePublished\":\"2017-09-05T06:56:54+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2017\\\/09\\\/05\\\/inauguramos-una-jornada-sobre-er-respiratorias-en-barcelona\\\/\"},\"wordCount\":296,\"commentCount\":0,\"keywords\":[\"enfermedades raras\"],\"articleSection\":[\"noticias\"],\"inLanguage\":\"es\",\"potentialAction\":[{\"@type\":\"CommentAction\",\"name\":\"Comment\",\"target\":[\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2017\\\/09\\\/05\\\/inauguramos-una-jornada-sobre-er-respiratorias-en-barcelona\\\/#respond\"]}]},{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2017\\\/09\\\/05\\\/inauguramos-una-jornada-sobre-er-respiratorias-en-barcelona\\\/\",\"url\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2017\\\/09\\\/05\\\/inauguramos-una-jornada-sobre-er-respiratorias-en-barcelona\\\/\",\"name\":\"Inauguramos una jornada sobre ER respiratorias en Barcelona - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/#website\"},\"datePublished\":\"2017-09-05T06:56:54+00:00\",\"author\":{\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/#\\\/schema\\\/person\\\/39a60ebe0a2b4d5a11179701e336b039\"},\"breadcrumb\":{\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2017\\\/09\\\/05\\\/inauguramos-una-jornada-sobre-er-respiratorias-en-barcelona\\\/#breadcrumb\"},\"inLanguage\":\"es\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2017\\\/09\\\/05\\\/inauguramos-una-jornada-sobre-er-respiratorias-en-barcelona\\\/\"]}]},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2017\\\/09\\\/05\\\/inauguramos-una-jornada-sobre-er-respiratorias-en-barcelona\\\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Portada\",\"item\":\"https:\\\/\\\/sindromecharge.es\\\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"Inauguramos una jornada sobre ER respiratorias en Barcelona\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/#website\",\"url\":\"https:\\\/\\\/sindromecharge.es\\\/\",\"name\":\"Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\",\"description\":\"\",\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\\\/\\\/sindromecharge.es\\\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"es\"},{\"@type\":\"Person\",\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/#\\\/schema\\\/person\\\/39a60ebe0a2b4d5a11179701e336b039\",\"name\":\"Charge\",\"image\":{\"@type\":\"ImageObject\",\"inLanguage\":\"es\",\"@id\":\"https:\\\/\\\/secure.gravatar.com\\\/avatar\\\/c3b46e32a0fc3b093a0873fb767bf3293de856293065e84ef06b7ec7a8acfb98?s=96&d=identicon&r=x\",\"url\":\"https:\\\/\\\/secure.gravatar.com\\\/avatar\\\/c3b46e32a0fc3b093a0873fb767bf3293de856293065e84ef06b7ec7a8acfb98?s=96&d=identicon&r=x\",\"contentUrl\":\"https:\\\/\\\/secure.gravatar.com\\\/avatar\\\/c3b46e32a0fc3b093a0873fb767bf3293de856293065e84ef06b7ec7a8acfb98?s=96&d=identicon&r=x\",\"caption\":\"Charge\"},\"url\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/author\\\/admin\\\/\"}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"Inauguramos una jornada sobre ER respiratorias en Barcelona - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/sindromecharge.es\/index.php\/2017\/09\/05\/inauguramos-una-jornada-sobre-er-respiratorias-en-barcelona\/","og_locale":"es_ES","og_type":"article","og_title":"Inauguramos una jornada sobre ER respiratorias en Barcelona - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge","og_description":"Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: El 20 de septiembre se celebra en Barcelona una jornada dedicada a las enfermedades raras (ER) respiratorias en la que la familia FEDER, la Federaci\u00f3n Espa\u00f1ola de Enfermedades Raras, estar\u00e1 representada por Jordi Cruz, su Delegado en Catalu\u00f1a. La cita, que tendr\u00e1 lugar [&hellip;]","og_url":"https:\/\/sindromecharge.es\/index.php\/2017\/09\/05\/inauguramos-una-jornada-sobre-er-respiratorias-en-barcelona\/","og_site_name":"Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge","article_publisher":"https:\/\/www.facebook.com\/asociacionsindromecharge","article_published_time":"2017-09-05T06:56:54+00:00","og_image":[{"width":300,"height":98,"url":"https:\/\/sindromecharge.es\/wp-content\/uploads\/2013\/09\/logodecharge300x98.png","type":"image\/png"}],"author":"Charge","twitter_card":"summary_large_image","twitter_creator":"@sindromecharge","twitter_site":"@sindromecharge","twitter_misc":{"Escrito por":"Charge","Tiempo de lectura":"1 minuto"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/sindromecharge.es\/index.php\/2017\/09\/05\/inauguramos-una-jornada-sobre-er-respiratorias-en-barcelona\/#article","isPartOf":{"@id":"https:\/\/sindromecharge.es\/index.php\/2017\/09\/05\/inauguramos-una-jornada-sobre-er-respiratorias-en-barcelona\/"},"author":{"name":"Charge","@id":"https:\/\/sindromecharge.es\/#\/schema\/person\/39a60ebe0a2b4d5a11179701e336b039"},"headline":"Inauguramos una jornada sobre ER respiratorias en Barcelona","datePublished":"2017-09-05T06:56:54+00:00","mainEntityOfPage":{"@id":"https:\/\/sindromecharge.es\/index.php\/2017\/09\/05\/inauguramos-una-jornada-sobre-er-respiratorias-en-barcelona\/"},"wordCount":296,"commentCount":0,"keywords":["enfermedades raras"],"articleSection":["noticias"],"inLanguage":"es","potentialAction":[{"@type":"CommentAction","name":"Comment","target":["https:\/\/sindromecharge.es\/index.php\/2017\/09\/05\/inauguramos-una-jornada-sobre-er-respiratorias-en-barcelona\/#respond"]}]},{"@type":"WebPage","@id":"https:\/\/sindromecharge.es\/index.php\/2017\/09\/05\/inauguramos-una-jornada-sobre-er-respiratorias-en-barcelona\/","url":"https:\/\/sindromecharge.es\/index.php\/2017\/09\/05\/inauguramos-una-jornada-sobre-er-respiratorias-en-barcelona\/","name":"Inauguramos una jornada sobre ER respiratorias en Barcelona - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge","isPartOf":{"@id":"https:\/\/sindromecharge.es\/#website"},"datePublished":"2017-09-05T06:56:54+00:00","author":{"@id":"https:\/\/sindromecharge.es\/#\/schema\/person\/39a60ebe0a2b4d5a11179701e336b039"},"breadcrumb":{"@id":"https:\/\/sindromecharge.es\/index.php\/2017\/09\/05\/inauguramos-una-jornada-sobre-er-respiratorias-en-barcelona\/#breadcrumb"},"inLanguage":"es","potentialAction":[{"@type":"ReadAction","target":["https:\/\/sindromecharge.es\/index.php\/2017\/09\/05\/inauguramos-una-jornada-sobre-er-respiratorias-en-barcelona\/"]}]},{"@type":"BreadcrumbList","@id":"https:\/\/sindromecharge.es\/index.php\/2017\/09\/05\/inauguramos-una-jornada-sobre-er-respiratorias-en-barcelona\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Portada","item":"https:\/\/sindromecharge.es\/"},{"@type":"ListItem","position":2,"name":"Inauguramos una jornada sobre ER respiratorias en Barcelona"}]},{"@type":"WebSite","@id":"https:\/\/sindromecharge.es\/#website","url":"https:\/\/sindromecharge.es\/","name":"Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge","description":"","potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/sindromecharge.es\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"es"},{"@type":"Person","@id":"https:\/\/sindromecharge.es\/#\/schema\/person\/39a60ebe0a2b4d5a11179701e336b039","name":"Charge","image":{"@type":"ImageObject","inLanguage":"es","@id":"https:\/\/secure.gravatar.com\/avatar\/c3b46e32a0fc3b093a0873fb767bf3293de856293065e84ef06b7ec7a8acfb98?s=96&d=identicon&r=x","url":"https:\/\/secure.gravatar.com\/avatar\/c3b46e32a0fc3b093a0873fb767bf3293de856293065e84ef06b7ec7a8acfb98?s=96&d=identicon&r=x","contentUrl":"https:\/\/secure.gravatar.com\/avatar\/c3b46e32a0fc3b093a0873fb767bf3293de856293065e84ef06b7ec7a8acfb98?s=96&d=identicon&r=x","caption":"Charge"},"url":"https:\/\/sindromecharge.es\/index.php\/author\/admin\/"}]}},"_links":{"self":[{"href":"https:\/\/sindromecharge.es\/index.php\/wp-json\/wp\/v2\/posts\/3126","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/sindromecharge.es\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/sindromecharge.es\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/sindromecharge.es\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/sindromecharge.es\/index.php\/wp-json\/wp\/v2\/comments?post=3126"}],"version-history":[{"count":0,"href":"https:\/\/sindromecharge.es\/index.php\/wp-json\/wp\/v2\/posts\/3126\/revisions"}],"wp:attachment":[{"href":"https:\/\/sindromecharge.es\/index.php\/wp-json\/wp\/v2\/media?parent=3126"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/sindromecharge.es\/index.php\/wp-json\/wp\/v2\/categories?post=3126"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/sindromecharge.es\/index.php\/wp-json\/wp\/v2\/tags?post=3126"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}