{"id":3096,"date":"2017-08-14T07:52:16","date_gmt":"2017-08-14T07:52:16","guid":{"rendered":"https:\/\/sindromecharge.es\/index.php\/2017\/08\/14\/2-de-octubre-xi-jornada-extremena-sobre-er\/"},"modified":"2017-08-14T07:52:16","modified_gmt":"2017-08-14T07:52:16","slug":"2-de-octubre-xi-jornada-extremena-sobre-er","status":"publish","type":"post","link":"https:\/\/sindromecharge.es\/index.php\/2017\/08\/14\/2-de-octubre-xi-jornada-extremena-sobre-er\/","title":{"rendered":"2 de octubre: XI Jornada Extreme\u00f1a sobre ER"},"content":{"rendered":"<p>Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: <\/p>\n<p>&nbsp;<\/p>\n<p><p>Nuestra delegaci\u00f3n extreme\u00f1a ya ha puesto fecha a la que ser\u00e1 la XI edici\u00f3n de sus jornadas auton\u00f3micas: el 2 de octubre en el Hospital Infanta Cristina de Badajoz.<\/p>\n<p>La jornada est\u00e1 Declarada de Inter\u00e9s Sanitario por la Consejer\u00eda de Sanidad y Pol\u00edticas Sociales y, durante m\u00e1s de una d\u00e9cada, se ha convertido en un referente en la difusi\u00f3n de informaci\u00f3n y formaci\u00f3n sobre las enfermedades raras y su abordaje a nivel auton\u00f3mico, donde se estima que m\u00e1s de 60.000 personas conviven con alguna de estas patolog\u00edas.<\/p>\n<p>La esencia de la misma radica en crear un punto de encuentro entre los principales referentes sanitarios y cient\u00edficos, pacientes, familias y asociaciones de la comunidad para poder abordar la situaci\u00f3n actual junto con la Administraci\u00f3n p\u00fablica. Este a\u00f1o, la investigaci\u00f3n tendr\u00e1 un papel prioritario, protagonista tambi\u00e9n del lema del encuentro: &#8216;La investigaci\u00f3n es nuestra esperanza&#8217;, siguiendo las prioridades de nuestra Federaci\u00f3n en este 2017.<\/p>\n<p>Las XI Jornadas Extreme\u00f1as de ER cuentan el patrocinio de la Fundaci\u00f3n Dolores Bas y con la colaboraci\u00f3n de la Junta de Extremadura, el Servicio Extreme\u00f1o de Salud (SES), la Diputaci\u00f3n y Ayuntamiento de Badajoz y la Oficina de Cooperaci\u00f3n Universitaria al Desarrollo y Voluntariado.<\/p>\n<h3>\u00a1No te quedes sin plaza!<\/h3>\n<p>Todos aquellos interesados pueden inscribirse por 5 euros. La inscripci\u00f3n se llevar\u00e1 a cabo a trav\u00e9s de CAJA RURAL: 3009 0088 29 209 3758726.<\/p>\n<p>Esta solicitud ha de confirmarse a nuestra delegaci\u00f3n bien a trav\u00e9s del 924 25 23 17 o en <a href=\"mailto:extremadura@enfermedades-raras.org\">extremadura@enfermedades-raras.org<\/a><a href=\"mailto:extremadura@enfermedades-raras.org.\">.<\/a><\/p>\n<p style=\"text-align: center\">\n<p style=\"font-weight: normal;font-style: normal;font-size: 11.97px\"><img decoding=\"async\" src=\"http:\/\/www.enfermedades-raras.org\/images\/sXIJornadaERExtremadurac.jpg\" alt=\"sXIJornadaERExtremadurac\" style=\"margin-right: auto;margin-left: auto\" \/><\/p>\n<\/p>\n<p style=\"text-align: right\">\u00daltima actualizaci\u00f3n: 14\/08\/2017.<\/p>\n<\/p>\n<p>Fuente: FEDER <a href=\"http:\/\/www.enfermedades-raras.org\/index.php\/actualidad\/noticias-eventos\/2-feder\/8865-2-de-octubre-xi-jornada-extreme%C3%B1a-sobre-er\" target=\"_blank\">2 de octubre: XI Jornada Extreme\u00f1a sobre ER<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: &nbsp; Nuestra delegaci\u00f3n extreme\u00f1a ya ha puesto fecha a la que ser\u00e1 la XI edici\u00f3n de sus jornadas auton\u00f3micas: el 2 de octubre en el Hospital Infanta Cristina de Badajoz. La jornada est\u00e1 Declarada de Inter\u00e9s Sanitario por la Consejer\u00eda de Sanidad y [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[8],"tags":[36],"class_list":["post-3096","post","type-post","status-publish","format-standard","hentry","category-noticias","tag-enfermedades-raras"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.2 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>2 de octubre: XI Jornada Extreme\u00f1a sobre ER - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/sindromecharge.es\/index.php\/2017\/08\/14\/2-de-octubre-xi-jornada-extremena-sobre-er\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"2 de octubre: XI Jornada Extreme\u00f1a sobre ER - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\" \/>\n<meta property=\"og:description\" content=\"Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: &nbsp; Nuestra delegaci\u00f3n extreme\u00f1a ya ha puesto fecha a la que ser\u00e1 la XI edici\u00f3n de sus jornadas auton\u00f3micas: el 2 de octubre en el Hospital Infanta Cristina de Badajoz. 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