{"id":3033,"date":"2017-07-05T10:32:10","date_gmt":"2017-07-05T10:32:10","guid":{"rendered":"https:\/\/sindromecharge.es\/index.php\/2017\/07\/05\/nace-el-consejo-asesor-de-pacientes-dentro-del-ciberer-2\/"},"modified":"2017-07-05T10:32:10","modified_gmt":"2017-07-05T10:32:10","slug":"nace-el-consejo-asesor-de-pacientes-dentro-del-ciberer-2","status":"publish","type":"post","link":"https:\/\/sindromecharge.es\/index.php\/2017\/07\/05\/nace-el-consejo-asesor-de-pacientes-dentro-del-ciberer-2\/","title":{"rendered":"Nace el Consejo Asesor de Pacientes dentro del CIBERER"},"content":{"rendered":"<p>Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: <\/p>\n<p>&nbsp;<\/p>\n<p>El viernes 7 de julio se constituir\u00e1 en Madrid el Consejo Asesor de Pacientes del Centro de Investigaci\u00f3n Biom\u00e9dica en Red de Enfermedades Raras (CIBERER). Desde FEDER estaremos representando a las familas en este consejo a trav\u00e9s de Juan Carri\u00f3n, Presidente de nuestra Federaci\u00f3n y Fundaci\u00f3n y durante esta constituci\u00f3n a trav\u00e9s de Fide Mir\u00f3n, nuestra Vicepresidenta.<\/p>\n<p>Seg\u00fan explican desde el propio CIBERER, el Consejo Asesor de Pacientes nace con la intenci\u00f3n de constituirse en foro de participaci\u00f3n de las entidades y asociaciones de pacientes con enfermedades raras para que trabajen, junto con los investigadores, en la mejora de la calidad de la investigaci\u00f3n biom\u00e9dica, aportando su percepci\u00f3n sobre la actividad investigadora desde la \u00f3ptica de los pacientes, funcionando como \u00f3rgano de asesoramiento e informaci\u00f3n.<\/p>\n<p>\u00a1Pronto actualizaremos informaci\u00f3n!<\/p>\n<p style=\"text-align: right\">\u00daltima actualizaci\u00f3n: 05\/07\/2017.<\/p>\n<p>&nbsp;<\/p>\n<p>Fuente: FEDER <a href=\"http:\/\/www.enfermedades-raras.org\/index.php\/actualidad\/noticias-eventos\/2-feder\/8661-nace-el-consejo-asesor-de-pacientes-dentro-del-ciberer\" target=\"_blank\">Nace el Consejo Asesor de Pacientes dentro del CIBERER<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: &nbsp; El viernes 7 de julio se constituir\u00e1 en Madrid el Consejo Asesor de Pacientes del Centro de Investigaci\u00f3n Biom\u00e9dica en Red de Enfermedades Raras (CIBERER). Desde FEDER estaremos representando a las familas en este consejo a trav\u00e9s de Juan Carri\u00f3n, Presidente de [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":"","_members_access_role":[],"_members_access_error":""},"categories":[8],"tags":[36],"class_list":["post-3033","post","type-post","status-publish","format-standard","hentry","category-noticias","tag-enfermedades-raras"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.2 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Nace el Consejo Asesor de Pacientes dentro del CIBERER - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/sindromecharge.es\/index.php\/2017\/07\/05\/nace-el-consejo-asesor-de-pacientes-dentro-del-ciberer-2\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Nace el Consejo Asesor de Pacientes dentro del CIBERER - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\" \/>\n<meta property=\"og:description\" content=\"Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: &nbsp; El viernes 7 de julio se constituir\u00e1 en Madrid el Consejo Asesor de Pacientes del Centro de Investigaci\u00f3n Biom\u00e9dica en Red de Enfermedades Raras (CIBERER). 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