{"id":3021,"date":"2017-07-04T04:58:00","date_gmt":"2017-07-04T04:58:00","guid":{"rendered":"https:\/\/sindromecharge.es\/index.php\/2017\/07\/04\/participamos-en-las-jornadas-sobre-cronicidad-de-la-pop\/"},"modified":"2017-07-04T04:58:00","modified_gmt":"2017-07-04T04:58:00","slug":"participamos-en-las-jornadas-sobre-cronicidad-de-la-pop","status":"publish","type":"post","link":"https:\/\/sindromecharge.es\/index.php\/2017\/07\/04\/participamos-en-las-jornadas-sobre-cronicidad-de-la-pop\/","title":{"rendered":"Participamos en las jornadas sobre cronicidad de la POP"},"content":{"rendered":"<p>Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: <\/p>\n<p>&nbsp;<\/p>\n<p>El jueves 6 de julio asistimos, a trav\u00e9s de Jos\u00e9 Luis Plaza, Vocal de nuestra Junta Direcitva, a una jornada organizada por la Plataforma de Organizaciones de Pacientes y el IMSERSO: La protecci\u00f3n de la persona con enfermedad cr\u00f3nica o s\u00edntomas cronificados.&nbsp;<span style=\"font-size: 11.97px;font-style: normal;font-weight: normal\">Inscripci\u00f3n gratuita&nbsp;<\/span><span style=\"font-weight: normal;font-style: normal;font-size: 11.97px\"><a href=\"https:\/\/docs.google.com\/forms\/d\/10TaEI0zBo1IIefLdzNsOffukkfVnwExxoUNyAAACc-I\/viewform?edit_requested=true\" target=\"_blank\">AQU\u00cd<\/a><\/span><span style=\"font-size: 11.97px;font-style: normal;font-weight: normal\">.<\/span><\/p>\n<p><p>El objetivo de estas jornadas es analizar y explicar los aspectos que recoge su proposici\u00f3n de Ley de Protecci\u00f3n de las Personas en Situaci\u00f3n de Cronicidad y antesala para la presentaci\u00f3n del texto a los grupos parlamentarios.<\/p>\n<p>A trav\u00e9s de esta propuesta, presentada por la Plataforma en el primer trimestre de este 2017, se busca proteger los derechos de 10 millones de personas en Espa\u00f1a que cursan con cronicidad. Para ello, la Plataforma insta a reconocer la situaci\u00f3n de cronicidad para permitir que el colectivo pueda tener las mismas oportunidades a nivel sociosanitario.<\/p>\n<p>Una problem\u00e1tica que ha quedado reflejada tras la reciente publicaci\u00f3n de los resultados del Bar\u00f3metro EsCr\u00f4nicos, donde \u201clas diferencias entre las Comunidades Aut\u00f3nomas en la atenci\u00f3n sanitaria es uno de los mayores problemas a los que nos enfrentamos los pacientes\u201d, tal y como afirm\u00f3 el presidente de la Plataforma de Organizaciones de Pacientes, Tom\u00e1s Castillo, quien tambi\u00e9n forma parte de la Junta Directiva de nuestra Federaci\u00f3n. <\/p>\n<p>A trav\u00e9s de este informe, se pone de relieve que \u201chay CCAA e incluso hospitales que subvencionan unos tratamientos o ayudas t\u00e9cnicas y otras, no. A los desplazados se les ponen l\u00edmites en el n\u00famero de medicamentos recetados, no se les deriva a especialistas o no realizan an\u00e1lisis si no son urgentes\u201d, explic\u00f3 Castillo.<\/p>\n<p>Precisamente la propuesta de Ley que esta semana se presenta, busca responder, entre otros, a este h\u00e1ndicap para que los medicamentos lleguen a tiempo a todos los enfermos y no se retrase su administraci\u00f3n, independientemente del lugar de residencia del paciente.<\/p>\n<\/p>\n<p style=\"text-align: right\">\u00daltima actualizaci\u00f3n: 04\/07\/2017.<\/p>\n<p>&nbsp;<\/p>\n<p>Fuente: FEDER <a href=\"http:\/\/www.enfermedades-raras.org\/index.php\/actualidad\/noticias-eventos\/2-feder\/8643-participamos-en-las-jornadas-sobre-cronicidad-de-la-pop\" target=\"_blank\">Participamos en las jornadas sobre cronicidad de la POP<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: &nbsp; El jueves 6 de julio asistimos, a trav\u00e9s de Jos\u00e9 Luis Plaza, Vocal de nuestra Junta Direcitva, a una jornada organizada por la Plataforma de Organizaciones de Pacientes y el IMSERSO: La protecci\u00f3n de la persona con enfermedad cr\u00f3nica o s\u00edntomas cronificados.&nbsp;Inscripci\u00f3n [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":"","_members_access_role":[],"_members_access_error":""},"categories":[8],"tags":[36],"class_list":["post-3021","post","type-post","status-publish","format-standard","hentry","category-noticias","tag-enfermedades-raras"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.2 - 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