{"id":2981,"date":"2017-06-21T10:18:38","date_gmt":"2017-06-21T10:18:38","guid":{"rendered":"https:\/\/sindromecharge.es\/index.php\/2017\/06\/21\/participa-en-la-ultima-encuesta-rarebarometer\/"},"modified":"2017-06-21T10:18:38","modified_gmt":"2017-06-21T10:18:38","slug":"participa-en-la-ultima-encuesta-rarebarometer","status":"publish","type":"post","link":"https:\/\/sindromecharge.es\/index.php\/2017\/06\/21\/participa-en-la-ultima-encuesta-rarebarometer\/","title":{"rendered":"\u00a1Participa en la \u00faltima encuesta #RareBarometer!"},"content":{"rendered":"<p>Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: <\/p>\n<p>&nbsp;<\/p>\n<p>Os invitamos a participar en la \u00faltima encuesta de Rare Barometer, un proyecto de la Organizaci\u00f3n Europea de ER (EURORDIS) que hacer de la perspectiva del paciente la herramienta para el dise\u00f1o de pol\u00edticas sociosanitarias.<\/p>\n<p>Esta nueva edici\u00f3n, se busca entender mejor el uso de medicinas y terapias complementarias y alternativas entre personas que viven con enfermedades raras y sus familias.<\/p>\n<p>La encuesta est\u00e1 disponible <span style=\"text-decoration: underline\"><a href=\"https:\/\/www.sphinxonline.com\/SurveyServer\/s\/EURORDIS75\/ES_alternative_medicines_ext\/questionnaire.htm\" target=\"_blank\">en este enlace<\/a><\/span> estar\u00e1 abierta hasta el 26 de junio y en ella pueden participar: pacientes y familiares.<br \/>\u00a1Participa y difunde junto al hashtag #RareBarometer!<\/p>\n<p>Si tienes alguna pregunta o comentarios, p\u00f3ngase en contacto con Sandra Courbier, Rar Bar\u00f3metro l\u00edder: sandra. Courbier@eurordis.org.<\/p>\n<p style=\"text-align: right\">\u00daltima actualizaci\u00f3n: 21\/06\/2017.<\/p>\n<p>&nbsp;<\/p>\n<p>Fuente: FEDER <a href=\"http:\/\/www.enfermedades-raras.org\/index.php\/actualidad\/noticias-eventos\/2-feder\/8560-participa-en-la-%C3%BAltima-encuesta-rarebarometer-%C2%A1s%C3%B3lo-5-minutos\" target=\"_blank\">\u00a1Participa en la \u00faltima encuesta #RareBarometer!<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: &nbsp; Os invitamos a participar en la \u00faltima encuesta de Rare Barometer, un proyecto de la Organizaci\u00f3n Europea de ER (EURORDIS) que hacer de la perspectiva del paciente la herramienta para el dise\u00f1o de pol\u00edticas sociosanitarias. Esta nueva edici\u00f3n, se busca entender mejor [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":"","_members_access_role":[],"_members_access_error":""},"categories":[8],"tags":[36],"class_list":["post-2981","post","type-post","status-publish","format-standard","hentry","category-noticias","tag-enfermedades-raras"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.2 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>\u00a1Participa en la \u00faltima encuesta #RareBarometer! - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/sindromecharge.es\/index.php\/2017\/06\/21\/participa-en-la-ultima-encuesta-rarebarometer\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"\u00a1Participa en la \u00faltima encuesta #RareBarometer! - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\" \/>\n<meta property=\"og:description\" content=\"Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: &nbsp; Os invitamos a participar en la \u00faltima encuesta de Rare Barometer, un proyecto de la Organizaci\u00f3n Europea de ER (EURORDIS) que hacer de la perspectiva del paciente la herramienta para el dise\u00f1o de pol\u00edticas sociosanitarias. 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