{"id":2873,"date":"2017-05-19T09:12:21","date_gmt":"2017-05-19T09:12:21","guid":{"rendered":"https:\/\/sindromecharge.es\/index.php\/2017\/05\/19\/nuestra-directora-nuevo-miembro-de-la-jd-de-eurordis\/"},"modified":"2017-05-19T09:12:21","modified_gmt":"2017-05-19T09:12:21","slug":"nuestra-directora-nuevo-miembro-de-la-jd-de-eurordis","status":"publish","type":"post","link":"https:\/\/sindromecharge.es\/index.php\/2017\/05\/19\/nuestra-directora-nuevo-miembro-de-la-jd-de-eurordis\/","title":{"rendered":"Nuestra directora, nuevo miembro de la JD de EURORDIS"},"content":{"rendered":"

Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: <\/p>\n

Alba Ancochea, Directora de FEDER y su Fundaci\u00f3n, ha sido elegida por el movimiento asociativo para formar parte de la Junta Directiva de EURORDIS (Organizaci\u00f3n Europea de Enfermedades Raras). La noticia se ha producido en el marco de la Asamblea Anual de Socios de la entidad europea, que se celebra los d\u00edas 19 y 20 de mayo en Budapest (Hungr\u00eda). <\/p>\n

En este encuentro, la familia FEDER estar\u00e1 representada por Juan Carri\u00f3n, Presidente de FEDER y su Fundaci\u00f3n, Jos\u00e9 Luis Plaza, Vocal de la Junta Directiva, e Isabel Fern\u00e1ndez, T\u00e9cnico del Servicio de Informaci\u00f3n y Orientaci\u00f3n de FEDER y representante en el INNOVCare de EURORDIS.<\/p>\n

Ancochea ha sido elegida entre un total de 9 candidatos<\/a>, formando ahora a pasar parte de los cinco miembros que conforman la Junta Directiva de la organizaci\u00f3n europea, \u00absiendo muy conscientes de la importancia que supone para nuestro movimiento asociativo estar representado dentro del \u00f3rgano de gobierno de EURORDIS, principal alianza de pacientes de enfermedades poco frecuentes a nivel europeo\u00bb valora, por su parte, Carri\u00f3n.<\/p>\n<\/p>\n

Por su parte, Ancochea ha defendido que cree \u00abfirmemente en la importancia del papel de las organizaciones de pacientes para lograr un cambio en modelo sociosanitario actual. Por eso, quiero contribuir a\u00fan m\u00e1s en el fortalecimiento de la capacidad de las asociaciones y la defensa de los pacientes con enfermedades raras formando parte de la Junta Directiva de EURORDIS, aportando nuevas perspectivas y experiencias y trabajando con todo mi entusiasmo y compromiso\u00bb.<\/p>\n

\u00daltima actualizaci\u00f3n: 19\/05\/2017.<\/p>\n

 <\/p>\n

Fuente: FEDER Nuestra directora, nuevo miembro de la JD de EURORDIS<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: Alba Ancochea, Directora de FEDER y su Fundaci\u00f3n, ha sido elegida por el movimiento asociativo para formar parte de la Junta Directiva de EURORDIS (Organizaci\u00f3n Europea de Enfermedades Raras). La noticia se ha producido en el marco de la Asamblea Anual de Socios […]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[8],"tags":[36],"class_list":["post-2873","post","type-post","status-publish","format-standard","hentry","category-noticias","tag-enfermedades-raras"],"yoast_head":"\nNuestra directora, nuevo miembro de la JD de EURORDIS - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/sindromecharge.es\/index.php\/2017\/05\/19\/nuestra-directora-nuevo-miembro-de-la-jd-de-eurordis\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Nuestra directora, nuevo miembro de la JD de EURORDIS - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\" \/>\n<meta property=\"og:description\" content=\"Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: Alba Ancochea, Directora de FEDER y su Fundaci\u00f3n, ha sido elegida por el movimiento asociativo para formar parte de la Junta Directiva de EURORDIS (Organizaci\u00f3n Europea de Enfermedades Raras). 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