{"id":2667,"date":"2017-03-10T07:19:46","date_gmt":"2017-03-10T07:19:46","guid":{"rendered":"http:\/\/sindromecharge.es\/index.php\/2017\/03\/10\/monografico-sobre-mm-hh-en-el-marco-del-dia-mundial\/"},"modified":"2017-03-10T07:19:46","modified_gmt":"2017-03-10T07:19:46","slug":"monografico-sobre-mm-hh-en-el-marco-del-dia-mundial","status":"publish","type":"post","link":"https:\/\/sindromecharge.es\/index.php\/2017\/03\/10\/monografico-sobre-mm-hh-en-el-marco-del-dia-mundial\/","title":{"rendered":"Monogr\u00e1fico sobre MM.HH en el marco del D\u00eda Mundial"},"content":{"rendered":"<p>Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: <\/p>\n<p>&nbsp;<\/p>\n<p>El 13 de marzo se celebra una jornada monogr\u00e1fico de Medicamentos Hu\u00e9rfanos en el marco de la reuni\u00f3n de la Comisi\u00f3n Asesora de Malalties Minoritaries (CAMM) donde estaremos representados a trav\u00e9s de Anna Ripoll, Vocal de la Junta Directiva de FEDER.<\/p>\n<p>El encuentro se enfocar\u00e1 as\u00ed en uno uno de los principales aspectos de trabajo a los que se enfrenta este colectivo de pacientes y es que, en la actualidad, son muy pocos los laboratorios que se dedican a la I+D de este tipo de medicamentos tan necesarios. Los que s\u00ed lo hacen, contribuyen no s\u00f3lo al desarrollo del f\u00e1rmaco sino tambi\u00e9n al mejor conocimiento de la propia enfermedad as\u00ed como en el abordaje de otras patolog\u00edas comunes.<\/p>\n<p>Por eso, nuestra campa\u00f1a de este a\u00f1o, \u2018La investigaci\u00f3n es nuestra esperanza\u2019, tiene como objetivo impulsar el conocimiento cient\u00edfico para mejorar el acceso a diagn\u00f3stico y tratamiento. La problem\u00e1tica principal y los pr\u00f3ximos retos, se abordar\u00e1n en este marco.<\/p>\n<p style=\"font-weight: normal;font-style: normal;font-size: 11.97px;text-align: right\">\u00daltima actualizaci\u00f3n: 10\/03\/2017.<\/p>\n<p>&nbsp;<\/p>\n<p>Fuente: FEDER <a href=\"http:\/\/www.enfermedades-raras.org\/index.php\/actualidad\/noticias-eventos\/2-feder\/7875-monogr%C3%A1fico-sobre-mm-hh-en-el-marco-del-d%C3%ADa-mundial\" target=\"_blank\">Monogr\u00e1fico sobre MM.HH en el marco del D\u00eda Mundial<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: &nbsp; El 13 de marzo se celebra una jornada monogr\u00e1fico de Medicamentos Hu\u00e9rfanos en el marco de la reuni\u00f3n de la Comisi\u00f3n Asesora de Malalties Minoritaries (CAMM) donde estaremos representados a trav\u00e9s de Anna Ripoll, Vocal de la Junta Directiva de FEDER. El [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[8],"tags":[36],"class_list":["post-2667","post","type-post","status-publish","format-standard","hentry","category-noticias","tag-enfermedades-raras"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.4 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Monogr\u00e1fico sobre MM.HH en el marco del D\u00eda Mundial - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/sindromecharge.es\/index.php\/2017\/03\/10\/monografico-sobre-mm-hh-en-el-marco-del-dia-mundial\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Monogr\u00e1fico sobre MM.HH en el marco del D\u00eda Mundial - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\" \/>\n<meta property=\"og:description\" content=\"Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: &nbsp; El 13 de marzo se celebra una jornada monogr\u00e1fico de Medicamentos Hu\u00e9rfanos en el marco de la reuni\u00f3n de la Comisi\u00f3n Asesora de Malalties Minoritaries (CAMM) donde estaremos representados a trav\u00e9s de Anna Ripoll, Vocal de la Junta Directiva de FEDER. 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