{"id":2659,"date":"2017-03-07T10:08:06","date_gmt":"2017-03-07T10:08:06","guid":{"rendered":"http:\/\/sindromecharge.es\/index.php\/2017\/03\/07\/la-ii-masterclass-sobre-mmhh-se-centra-en-la-investigacion\/"},"modified":"2017-03-07T10:08:06","modified_gmt":"2017-03-07T10:08:06","slug":"la-ii-masterclass-sobre-mmhh-se-centra-en-la-investigacion","status":"publish","type":"post","link":"https:\/\/sindromecharge.es\/index.php\/2017\/03\/07\/la-ii-masterclass-sobre-mmhh-se-centra-en-la-investigacion\/","title":{"rendered":"La II Masterclass sobre MMHH se centra en la investigaci\u00f3n"},"content":{"rendered":"

Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: <\/p>\n

Tras el \u00e9xito de su primera edici\u00f3n, Santiago de Compostela acoge la II Masterclass sobre Medicamentos Hu\u00e9rfanos y Enfermedades Raras. Este a\u00f1o, el foro organizado conjuntamente por FEDER y BioMarin pondr\u00e1 el foco en la investigaci\u00f3n, acorde con la campa\u00f1a \u2018La investigaci\u00f3n es nuestra esperanza\u2019 que la federaci\u00f3n est\u00e1 desarrollando en el marco del D\u00eda Mundial de las Enfermedades Raras.<\/p>\n

La inequidad en el acceso a los medicamentos hu\u00e9rfanos y la necesidad de una mejor coordinaci\u00f3n entre todos los agentes implicados a nivel nacional motiv\u00f3 el nacimiento de este encuentro en 2016. Un encuentro que naci\u00f3 con el objetivo de convertirse en una actividad de formaci\u00f3n imprescindible para todos aquellos involucrados en el abordaje de las enfermedades poco frecuentes, dando cita a pacientes, farmac\u00e9uticos, gerentes de hospitales y representantes de las Comunidades Aut\u00f3nomas.<\/p>\n

\u00daltima actualizaci\u00f3n: 07\/03\/2017.<\/p>\n

 <\/p>\n<\/p>\n

Fuente: FEDER La II Masterclass sobre MMHH se centra en la investigaci\u00f3n<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: Tras el \u00e9xito de su primera edici\u00f3n, Santiago de Compostela acoge la II Masterclass sobre Medicamentos Hu\u00e9rfanos y Enfermedades Raras. Este a\u00f1o, el foro organizado conjuntamente por FEDER y BioMarin pondr\u00e1 el foco en la investigaci\u00f3n, acorde con la campa\u00f1a \u2018La investigaci\u00f3n es […]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[8],"tags":[36],"class_list":["post-2659","post","type-post","status-publish","format-standard","hentry","category-noticias","tag-enfermedades-raras"],"yoast_head":"\nLa II Masterclass sobre MMHH se centra en la investigaci\u00f3n - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/sindromecharge.es\/index.php\/2017\/03\/07\/la-ii-masterclass-sobre-mmhh-se-centra-en-la-investigacion\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"La II Masterclass sobre MMHH se centra en la investigaci\u00f3n - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\" \/>\n<meta property=\"og:description\" content=\"Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: Tras el \u00e9xito de su primera edici\u00f3n, Santiago de Compostela acoge la II Masterclass sobre Medicamentos Hu\u00e9rfanos y Enfermedades Raras. Este a\u00f1o, el foro organizado conjuntamente por FEDER y BioMarin pondr\u00e1 el foco en la investigaci\u00f3n, acorde con la campa\u00f1a \u2018La investigaci\u00f3n es […]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/sindromecharge.es\/index.php\/2017\/03\/07\/la-ii-masterclass-sobre-mmhh-se-centra-en-la-investigacion\/\" \/>\n<meta property=\"og:site_name\" content=\"Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/asociacionsindromecharge\" \/>\n<meta property=\"article:published_time\" content=\"2017-03-07T10:08:06+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/sindromecharge.es\/wp-content\/uploads\/2013\/09\/logodecharge300x98.png\" \/>\n\t<meta property=\"og:image:width\" content=\"300\" \/>\n\t<meta property=\"og:image:height\" content=\"98\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"Charge\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@sindromecharge\" \/>\n<meta name=\"twitter:site\" content=\"@sindromecharge\" \/>\n<meta name=\"twitter:label1\" content=\"Escrito por\" \/>\n\t<meta name=\"twitter:data1\" content=\"Charge\" \/>\n\t<meta name=\"twitter:label2\" content=\"Tiempo de lectura\" \/>\n\t<meta name=\"twitter:data2\" content=\"1 minuto\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2017\\\/03\\\/07\\\/la-ii-masterclass-sobre-mmhh-se-centra-en-la-investigacion\\\/#article\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2017\\\/03\\\/07\\\/la-ii-masterclass-sobre-mmhh-se-centra-en-la-investigacion\\\/\"},\"author\":{\"name\":\"Charge\",\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/#\\\/schema\\\/person\\\/39a60ebe0a2b4d5a11179701e336b039\"},\"headline\":\"La II Masterclass sobre MMHH se centra en la investigaci\u00f3n\",\"datePublished\":\"2017-03-07T10:08:06+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2017\\\/03\\\/07\\\/la-ii-masterclass-sobre-mmhh-se-centra-en-la-investigacion\\\/\"},\"wordCount\":185,\"commentCount\":0,\"keywords\":[\"enfermedades raras\"],\"articleSection\":[\"noticias\"],\"inLanguage\":\"es\",\"potentialAction\":[{\"@type\":\"CommentAction\",\"name\":\"Comment\",\"target\":[\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2017\\\/03\\\/07\\\/la-ii-masterclass-sobre-mmhh-se-centra-en-la-investigacion\\\/#respond\"]}]},{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2017\\\/03\\\/07\\\/la-ii-masterclass-sobre-mmhh-se-centra-en-la-investigacion\\\/\",\"url\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2017\\\/03\\\/07\\\/la-ii-masterclass-sobre-mmhh-se-centra-en-la-investigacion\\\/\",\"name\":\"La II Masterclass sobre MMHH se centra en la investigaci\u00f3n - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/#website\"},\"datePublished\":\"2017-03-07T10:08:06+00:00\",\"author\":{\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/#\\\/schema\\\/person\\\/39a60ebe0a2b4d5a11179701e336b039\"},\"breadcrumb\":{\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2017\\\/03\\\/07\\\/la-ii-masterclass-sobre-mmhh-se-centra-en-la-investigacion\\\/#breadcrumb\"},\"inLanguage\":\"es\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2017\\\/03\\\/07\\\/la-ii-masterclass-sobre-mmhh-se-centra-en-la-investigacion\\\/\"]}]},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2017\\\/03\\\/07\\\/la-ii-masterclass-sobre-mmhh-se-centra-en-la-investigacion\\\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Portada\",\"item\":\"https:\\\/\\\/sindromecharge.es\\\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"La II Masterclass sobre MMHH se centra en la investigaci\u00f3n\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/#website\",\"url\":\"https:\\\/\\\/sindromecharge.es\\\/\",\"name\":\"Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\",\"description\":\"\",\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\\\/\\\/sindromecharge.es\\\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"es\"},{\"@type\":\"Person\",\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/#\\\/schema\\\/person\\\/39a60ebe0a2b4d5a11179701e336b039\",\"name\":\"Charge\",\"image\":{\"@type\":\"ImageObject\",\"inLanguage\":\"es\",\"@id\":\"https:\\\/\\\/secure.gravatar.com\\\/avatar\\\/c3b46e32a0fc3b093a0873fb767bf3293de856293065e84ef06b7ec7a8acfb98?s=96&d=identicon&r=x\",\"url\":\"https:\\\/\\\/secure.gravatar.com\\\/avatar\\\/c3b46e32a0fc3b093a0873fb767bf3293de856293065e84ef06b7ec7a8acfb98?s=96&d=identicon&r=x\",\"contentUrl\":\"https:\\\/\\\/secure.gravatar.com\\\/avatar\\\/c3b46e32a0fc3b093a0873fb767bf3293de856293065e84ef06b7ec7a8acfb98?s=96&d=identicon&r=x\",\"caption\":\"Charge\"},\"url\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/author\\\/admin\\\/\"}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"La II Masterclass sobre MMHH se centra en la investigaci\u00f3n - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/sindromecharge.es\/index.php\/2017\/03\/07\/la-ii-masterclass-sobre-mmhh-se-centra-en-la-investigacion\/","og_locale":"es_ES","og_type":"article","og_title":"La II Masterclass sobre MMHH se centra en la investigaci\u00f3n - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge","og_description":"Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: Tras el \u00e9xito de su primera edici\u00f3n, Santiago de Compostela acoge la II Masterclass sobre Medicamentos Hu\u00e9rfanos y Enfermedades Raras. Este a\u00f1o, el foro organizado conjuntamente por FEDER y BioMarin pondr\u00e1 el foco en la investigaci\u00f3n, acorde con la campa\u00f1a \u2018La investigaci\u00f3n es […]","og_url":"https:\/\/sindromecharge.es\/index.php\/2017\/03\/07\/la-ii-masterclass-sobre-mmhh-se-centra-en-la-investigacion\/","og_site_name":"Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge","article_publisher":"https:\/\/www.facebook.com\/asociacionsindromecharge","article_published_time":"2017-03-07T10:08:06+00:00","og_image":[{"width":300,"height":98,"url":"https:\/\/sindromecharge.es\/wp-content\/uploads\/2013\/09\/logodecharge300x98.png","type":"image\/png"}],"author":"Charge","twitter_card":"summary_large_image","twitter_creator":"@sindromecharge","twitter_site":"@sindromecharge","twitter_misc":{"Escrito por":"Charge","Tiempo de lectura":"1 minuto"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/sindromecharge.es\/index.php\/2017\/03\/07\/la-ii-masterclass-sobre-mmhh-se-centra-en-la-investigacion\/#article","isPartOf":{"@id":"https:\/\/sindromecharge.es\/index.php\/2017\/03\/07\/la-ii-masterclass-sobre-mmhh-se-centra-en-la-investigacion\/"},"author":{"name":"Charge","@id":"https:\/\/sindromecharge.es\/#\/schema\/person\/39a60ebe0a2b4d5a11179701e336b039"},"headline":"La II Masterclass sobre MMHH se centra en la investigaci\u00f3n","datePublished":"2017-03-07T10:08:06+00:00","mainEntityOfPage":{"@id":"https:\/\/sindromecharge.es\/index.php\/2017\/03\/07\/la-ii-masterclass-sobre-mmhh-se-centra-en-la-investigacion\/"},"wordCount":185,"commentCount":0,"keywords":["enfermedades raras"],"articleSection":["noticias"],"inLanguage":"es","potentialAction":[{"@type":"CommentAction","name":"Comment","target":["https:\/\/sindromecharge.es\/index.php\/2017\/03\/07\/la-ii-masterclass-sobre-mmhh-se-centra-en-la-investigacion\/#respond"]}]},{"@type":"WebPage","@id":"https:\/\/sindromecharge.es\/index.php\/2017\/03\/07\/la-ii-masterclass-sobre-mmhh-se-centra-en-la-investigacion\/","url":"https:\/\/sindromecharge.es\/index.php\/2017\/03\/07\/la-ii-masterclass-sobre-mmhh-se-centra-en-la-investigacion\/","name":"La II Masterclass sobre MMHH se centra en la investigaci\u00f3n - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge","isPartOf":{"@id":"https:\/\/sindromecharge.es\/#website"},"datePublished":"2017-03-07T10:08:06+00:00","author":{"@id":"https:\/\/sindromecharge.es\/#\/schema\/person\/39a60ebe0a2b4d5a11179701e336b039"},"breadcrumb":{"@id":"https:\/\/sindromecharge.es\/index.php\/2017\/03\/07\/la-ii-masterclass-sobre-mmhh-se-centra-en-la-investigacion\/#breadcrumb"},"inLanguage":"es","potentialAction":[{"@type":"ReadAction","target":["https:\/\/sindromecharge.es\/index.php\/2017\/03\/07\/la-ii-masterclass-sobre-mmhh-se-centra-en-la-investigacion\/"]}]},{"@type":"BreadcrumbList","@id":"https:\/\/sindromecharge.es\/index.php\/2017\/03\/07\/la-ii-masterclass-sobre-mmhh-se-centra-en-la-investigacion\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Portada","item":"https:\/\/sindromecharge.es\/"},{"@type":"ListItem","position":2,"name":"La II Masterclass sobre MMHH se centra en la investigaci\u00f3n"}]},{"@type":"WebSite","@id":"https:\/\/sindromecharge.es\/#website","url":"https:\/\/sindromecharge.es\/","name":"Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge","description":"","potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/sindromecharge.es\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"es"},{"@type":"Person","@id":"https:\/\/sindromecharge.es\/#\/schema\/person\/39a60ebe0a2b4d5a11179701e336b039","name":"Charge","image":{"@type":"ImageObject","inLanguage":"es","@id":"https:\/\/secure.gravatar.com\/avatar\/c3b46e32a0fc3b093a0873fb767bf3293de856293065e84ef06b7ec7a8acfb98?s=96&d=identicon&r=x","url":"https:\/\/secure.gravatar.com\/avatar\/c3b46e32a0fc3b093a0873fb767bf3293de856293065e84ef06b7ec7a8acfb98?s=96&d=identicon&r=x","contentUrl":"https:\/\/secure.gravatar.com\/avatar\/c3b46e32a0fc3b093a0873fb767bf3293de856293065e84ef06b7ec7a8acfb98?s=96&d=identicon&r=x","caption":"Charge"},"url":"https:\/\/sindromecharge.es\/index.php\/author\/admin\/"}]}},"_links":{"self":[{"href":"https:\/\/sindromecharge.es\/index.php\/wp-json\/wp\/v2\/posts\/2659","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/sindromecharge.es\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/sindromecharge.es\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/sindromecharge.es\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/sindromecharge.es\/index.php\/wp-json\/wp\/v2\/comments?post=2659"}],"version-history":[{"count":0,"href":"https:\/\/sindromecharge.es\/index.php\/wp-json\/wp\/v2\/posts\/2659\/revisions"}],"wp:attachment":[{"href":"https:\/\/sindromecharge.es\/index.php\/wp-json\/wp\/v2\/media?parent=2659"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/sindromecharge.es\/index.php\/wp-json\/wp\/v2\/categories?post=2659"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/sindromecharge.es\/index.php\/wp-json\/wp\/v2\/tags?post=2659"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}