{"id":2587,"date":"2017-02-14T10:29:23","date_gmt":"2017-02-14T10:29:23","guid":{"rendered":"http:\/\/sindromecharge.es\/index.php\/2017\/02\/14\/el-edp-rock-n-roll-madrid-maraton-2017-con-las-er\/"},"modified":"2017-02-14T10:29:23","modified_gmt":"2017-02-14T10:29:23","slug":"el-edp-rock-n-roll-madrid-maraton-2017-con-las-er","status":"publish","type":"post","link":"https:\/\/sindromecharge.es\/index.php\/2017\/02\/14\/el-edp-rock-n-roll-madrid-maraton-2017-con-las-er\/","title":{"rendered":"El Edp Rock \u2018n\u2019 Roll Madrid Marat\u00f3n 2017 con las ER"},"content":{"rendered":"

Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: <\/p>\n

<\/p>\n

La Asociaci\u00f3n Deportiva MAPOMA ha sacado a la venta sus inscripciones solidarias para disputar el Edp Rock \u2018n\u2019 Roll Madrid Marat\u00f3n 2017, y colaborar con los miles de personas que conviven con enfermedades poco frecuentes en nuestro pa\u00eds.<\/p>\n

Y es que este a\u00f1o MAPOMA ha designado como uno de sus beneficiarios a la Federaci\u00f3n Espa\u00f1ola De Enfermedades Raras (FEDER) a la que donar\u00e1 parte de lo recaudado mediante la venta de las 450 inscripciones solidarias.<\/p>\n

Estas inscripciones tienen un descuento de 15 euros en relaci\u00f3n con el precio de una inscripci\u00f3n normal y su importe ir\u00e1 destinado de manera \u00edntegra a las causas solidarias de FEDER, la fundaci\u00f3n MAPOMA y la Fundaci\u00f3n Tambi\u00e9n.<\/p>\n

En el caso FEDER, esta donaci\u00f3n servir\u00e1 para seguir trabajando en la visibilizaci\u00f3n de las enfermedades raras y en la lucha por los derechos y la mejora de calidad de vida de las personas que conviven con estas patolog\u00edas.<\/p>\n

De este modo, MAPOMA sigue apostando por introducir los valores humanitarios en sus competiciones como medio para lograr una sociedad m\u00e1s justa y tratando de fomentar una comunidad m\u00e1s deportiva y comprometida con los grupos menos favorecidos, incrementando la igualdad entre ciudadanos y la promoci\u00f3n de la pr\u00e1ctica deportiva.<\/p>\n

\u201cDesde FEDER os animamos a participar en este evento en el que el deporte y la solidaridad corren de la mano. Agradecemos a la A.D. MAPOMA el contar con la Federaci\u00f3n para una causa tan especial que estamos seguros nos ayudar\u00e1 a acercar la realidad de estas patolog\u00edas a la sociedad\u201d<\/p>\n

No lo dudes y ap\u00fantate para correr el pr\u00f3ximo 23 de Abril<\/a><\/p>\n

<\/span><\/p>\n<\/p>\n

Fuente: FEDER El Edp Rock \u2018n\u2019 Roll Madrid Marat\u00f3n 2017 con las ER<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: La Asociaci\u00f3n Deportiva MAPOMA ha sacado a la venta sus inscripciones solidarias para disputar el Edp Rock \u2018n\u2019 Roll Madrid Marat\u00f3n 2017, y colaborar con los miles de personas que conviven con enfermedades poco frecuentes en nuestro pa\u00eds. Y es que este a\u00f1o […]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[8],"tags":[36],"class_list":["post-2587","post","type-post","status-publish","format-standard","hentry","category-noticias","tag-enfermedades-raras"],"yoast_head":"\nEl Edp Rock \u2018n\u2019 Roll Madrid Marat\u00f3n 2017 con las ER - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/sindromecharge.es\/index.php\/2017\/02\/14\/el-edp-rock-n-roll-madrid-maraton-2017-con-las-er\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"El Edp Rock \u2018n\u2019 Roll Madrid Marat\u00f3n 2017 con las ER - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\" \/>\n<meta property=\"og:description\" content=\"Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: La Asociaci\u00f3n Deportiva MAPOMA ha sacado a la venta sus inscripciones solidarias para disputar el Edp Rock \u2018n\u2019 Roll Madrid Marat\u00f3n 2017, y colaborar con los miles de personas que conviven con enfermedades poco frecuentes en nuestro pa\u00eds. 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