{"id":2037,"date":"2016-10-06T09:56:38","date_gmt":"2016-10-06T09:56:38","guid":{"rendered":"http:\/\/sindromecharge.es\/index.php\/2016\/10\/06\/la-fmf-protagonista-en-el-programa-de-radio-enfermedades-raras\/"},"modified":"2016-10-06T09:56:38","modified_gmt":"2016-10-06T09:56:38","slug":"la-fmf-protagonista-en-el-programa-de-radio-enfermedades-raras","status":"publish","type":"post","link":"https:\/\/sindromecharge.es\/index.php\/2016\/10\/06\/la-fmf-protagonista-en-el-programa-de-radio-enfermedades-raras\/","title":{"rendered":"La FMF, protagonista en el programa de radio Enfermedades Raras"},"content":{"rendered":"

Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: <\/p>\n

El jueves 06\/10 en el programa de radio \u00bb Enfermedades raras\u00bb en Gestiona radio de 13 a 14 horas, trataremos la \u00bb Fiebre Mediterr\u00e1nea Familiar\u00bb.<\/p>\n

Tres grandes profesionales nos hablaran de esta patolog\u00eda tan desconocida: el Dr. \u00c1ngel Robles, Hospital La Paz de Madrid; D\u00aa Virginia de Lanzas, Fundaci\u00f3n Quaes; D\u00aa Cuca Paulo, asociaci\u00f3n Stop FMF.<\/p>\n

Sobre el programa<\/h3>\n

Antonio G. Armas, director y presentador de \u2018Enfermedades Raras\u2019, explica que \u201ccada semana, el programa nos acerca a una enfermedad rara en concreto y, para ello, las asociaciones, federaciones y fundaciones de pacientes abrir\u00e1n el programa para desgranarnos, desde un punto de vista siempre positivista, cu\u00e1les han sido los planes de actuaci\u00f3n de sus entidades que han provocado una mejora en el bienestar de sus asociados\u201d.<\/p>\n

Asimismo, y adem\u00e1s de los aspectos pol\u00edticos y legislativos, la investigaci\u00f3n cient\u00edfico-m\u00e9dica tambi\u00e9n tiene un papel predominante en \u2018Enfermedades Raras\u2019, en el que un especialista ofrece informaci\u00f3n sobre la patolog\u00eda tratada en cada programa desde dos puntos de vista diferentes: de una manera comprensible y cercana para los oyentes sin formaci\u00f3n espec\u00edfica en el \u00e1mbito sociosanitario; y de forma cient\u00edfica, dirigi\u00e9ndose principalmente a los profesionales sanitarios.<\/p>\n

El programa puede seguirse a trav\u00e9s de las frecuencias: 108.0 fm en Madrid, 107.1 en Valencia, 94.8 en Granada, 98.1 en Andorra, 95.1 en Oviedo, 95.1 en Avil\u00e9s, 87.5 en Alicante, 100.4 en Bilbao, 92.2 en Castell\u00f3n, 107.8 en el Puerto de Santa Mar\u00eda, 105.2 en Toledo, 94.0 en Tenerife, 94.3 en Pontevedra, 93.1 en Ferrol, 99.6 en La Guardia, 94.7 en Ponte Areas, 102.5 en Villagarc\u00eda de Arosa, 107.2 en La Coru\u00f1a, 101.5 en Cartagena, 92.6 en Murcia, 99.7 en Zaragoza, 92.2 en Marbella, 103.0 en Palencia, 92.6 en Valladolid y 101.6, 91.7 y 107.1 en Gran Canaria.<\/span><\/p>\n

Y por internet en www.gestionaradio.com<\/a><\/p>\n<\/p>\n

Fuente: FEDER La FMF, protagonista en el programa de radio Enfermedades Raras<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: El jueves 06\/10 en el programa de radio \u00bb Enfermedades raras\u00bb en Gestiona radio de 13 a 14 horas, trataremos la \u00bb Fiebre Mediterr\u00e1nea Familiar\u00bb. Tres grandes profesionales nos hablaran de esta patolog\u00eda tan desconocida: el Dr. \u00c1ngel Robles, Hospital La Paz de Madrid; […]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[8],"tags":[36],"class_list":["post-2037","post","type-post","status-publish","format-standard","hentry","category-noticias","tag-enfermedades-raras"],"yoast_head":"\nLa FMF, protagonista en el programa de radio Enfermedades Raras - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/sindromecharge.es\/index.php\/2016\/10\/06\/la-fmf-protagonista-en-el-programa-de-radio-enfermedades-raras\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"La FMF, protagonista en el programa de radio Enfermedades Raras - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\" \/>\n<meta property=\"og:description\" content=\"Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: El jueves 06\/10 en el programa de radio \u00bb Enfermedades raras\u00bb en Gestiona radio de 13 a 14 horas, trataremos la \u00bb Fiebre Mediterr\u00e1nea Familiar\u00bb. 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