{"id":2001,"date":"2016-10-03T10:18:37","date_gmt":"2016-10-03T10:18:37","guid":{"rendered":"http:\/\/sindromecharge.es\/index.php\/2016\/10\/03\/el-libro-etica-de-la-investigacion-en-er-llega-a-barcelona\/"},"modified":"2016-10-03T10:18:37","modified_gmt":"2016-10-03T10:18:37","slug":"el-libro-etica-de-la-investigacion-en-er-llega-a-barcelona","status":"publish","type":"post","link":"https:\/\/sindromecharge.es\/index.php\/2016\/10\/03\/el-libro-etica-de-la-investigacion-en-er-llega-a-barcelona\/","title":{"rendered":"El libro &#039;\u00c9tica de la investigaci\u00f3n en ER&#039; llega a Barcelona"},"content":{"rendered":"<p>Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: <\/p>\n<p><strong>Jordi Cruz, Delegado FEDER Catalu\u00f1a y Anna Ripoll, Vocal de la Junta Directiva de FEDER, participan el 6 de octubre en la presentaci\u00f3n del libro <i>\u00c9tica de la investigaci\u00f3n en enfermedades raras.<\/i>&nbsp;La cita tiene lugar a las 16:00 horas en el Auditori Edifici Docent del Hospital San Joan de D\u00e9u de &nbsp;Barcelona.<\/strong><\/p>\n<p><p>Un grupo formado por 14 autores procedentes de distintas disciplinas han lanzado la que supone la primera monograf\u00eda sobre este tema editada en lengua espa\u00f1ola, que nace con el objetivo de \u201cresponder a las inquietudes \u00e9ticas que la investigaci\u00f3n en enfermedades raras plantea actualmente\u00bb, seg\u00fan sus autores, entre los que se encuentra el propio Cruz.<\/p>\n<p>La obra, firmada por investigadores, m\u00e9dicos, responsables de agencias reguladoras, bioeticistas y familiares y representantes de pacientes, aborda todos los dilemas \u00e9ticos que conlleva la investigaci\u00f3n de estas patolog\u00edas, que aunque afectan a pocos pacientes por separado en conjunto son padecidas por m\u00e1s de tres millones de espa\u00f1oles.<\/p>\n<\/p>\n<p>Fuente: FEDER <a href=\"http:\/\/www.enfermedades-raras.org\/index.php\/actualidad\/noticias-eventos\/2-feder\/6858-el-libro-%C3%A9tica-de-la-investigaci%C3%B3n-en-er-llega-a-barcelona\" target=\"_blank\">El libro &#039;\u00c9tica de la investigaci\u00f3n en ER&#039; llega a Barcelona<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: Jordi Cruz, Delegado FEDER Catalu\u00f1a y Anna Ripoll, Vocal de la Junta Directiva de FEDER, participan el 6 de octubre en la presentaci\u00f3n del libro \u00c9tica de la investigaci\u00f3n en enfermedades raras.&nbsp;La cita tiene lugar a las 16:00 horas en el Auditori Edifici [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[8],"tags":[36],"class_list":["post-2001","post","type-post","status-publish","format-standard","hentry","category-noticias","tag-enfermedades-raras"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.7 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>El libro &#039;\u00c9tica de la investigaci\u00f3n en ER&#039; llega a Barcelona - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/sindromecharge.es\/index.php\/2016\/10\/03\/el-libro-etica-de-la-investigacion-en-er-llega-a-barcelona\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"El libro &#039;\u00c9tica de la investigaci\u00f3n en ER&#039; 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