{"id":1957,"date":"2016-09-21T07:33:12","date_gmt":"2016-09-21T07:33:12","guid":{"rendered":"http:\/\/sindromecharge.es\/index.php\/2016\/09\/21\/feder-participa-en-una-jornada-sobre-fpi-en-barcelona\/"},"modified":"2016-09-21T07:33:12","modified_gmt":"2016-09-21T07:33:12","slug":"feder-participa-en-una-jornada-sobre-fpi-en-barcelona","status":"publish","type":"post","link":"https:\/\/sindromecharge.es\/index.php\/2016\/09\/21\/feder-participa-en-una-jornada-sobre-fpi-en-barcelona\/","title":{"rendered":"FEDER participa en una jornada sobre FPI en Barcelona"},"content":{"rendered":"

Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: <\/p>\n

El jueves d\u00eda 22 de septiembre tendr\u00e1 lugar una jornada dedicada a la Fibrosis Pulmonar Idiop\u00e1tica en la Sala Francisco Camb\u00f3 del Recinto Modernista del Hospital de la Santa Cruz y San Pablo, de 16:00 a 17:30 horas para profesionales y de 18:00 a 20:00 horas abierta a profesionales y pacientes.<\/p>\n

La Federaci\u00f3n Espa\u00f1ola de Enfermedades Raras (FEDER) estar\u00e1 representada en este encuentro a trav\u00e9s de Jordi Cruz, Delegado en Catalu\u00f1a, quien participar\u00e1 en la bienvenida del encuentro que busca acoger tanto a pacientes como a profesionales sanitarios.<\/p>\n

Esta jornada tiene por objetivo revisar cuestiones pr\u00e1cticas sobre el diagn\u00f3stico precoz, el papel actual de la criobi\u00f2psia, las ventajas del TCAR en el seguimiento de la FPI, as\u00ed como en la segunda parte abierta a todos donde se abordar\u00e1 la actualidad del tratamiento. En esta segunda parte, se contar\u00e1 con una mesa multidisciplinar donde se hablara de los retos con el abordaje de esta enfermedad. Esperando que fruto de esta jornada con interacci\u00f3n entre profesionales y pacientes poder continuar mejorando la atenci\u00f3n, y la calidad de vida de las personas que viven con esta enfermedad minoritaria.<\/p>\n

Destacar que todos los asistentes a la jornada recibir\u00e1n el libro escrito por Andreu Clap\u00e9s, afectado por FPI \u00abVivencias de un enfermo pulmonar\u00bb. Puede hacer su inscripci\u00f3n es gratuita online mediante el siguiente enlace. En caso de que necesite int\u00e9rprete en lengua de signos o subtitulado de textos, por favor, h\u00e1galo saber al confirmar la asistencia.<\/p>\n<\/p>\n

Fuente: FEDER FEDER participa en una jornada sobre FPI en Barcelona<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: El jueves d\u00eda 22 de septiembre tendr\u00e1 lugar una jornada dedicada a la Fibrosis Pulmonar Idiop\u00e1tica en la Sala Francisco Camb\u00f3 del Recinto Modernista del Hospital de la Santa Cruz y San Pablo, de 16:00 a 17:30 horas para profesionales y de 18:00 […]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":"","_members_access_role":[],"_members_access_error":""},"categories":[8],"tags":[36],"class_list":["post-1957","post","type-post","status-publish","format-standard","hentry","category-noticias","tag-enfermedades-raras"],"yoast_head":"\nFEDER participa en una jornada sobre FPI en Barcelona - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/sindromecharge.es\/index.php\/2016\/09\/21\/feder-participa-en-una-jornada-sobre-fpi-en-barcelona\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"FEDER participa en una jornada sobre FPI en Barcelona - 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