{"id":1936,"date":"2016-09-12T05:59:34","date_gmt":"2016-09-12T05:59:34","guid":{"rendered":"http:\/\/sindromecharge.es\/index.php\/2016\/09\/12\/la-labor-de-feder-protagonista-en-gestiona-radio\/"},"modified":"2016-09-12T05:59:34","modified_gmt":"2016-09-12T05:59:34","slug":"la-labor-de-feder-protagonista-en-gestiona-radio","status":"publish","type":"post","link":"https:\/\/sindromecharge.es\/index.php\/2016\/09\/12\/la-labor-de-feder-protagonista-en-gestiona-radio\/","title":{"rendered":"La labor de FEDER, protagonista en Gestiona Radio"},"content":{"rendered":"

Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: <\/p>\n

El programa radiof\u00f3nico \u2018Enfermedades Raras\u2019 entrevist\u00f3 el pasado 8 de septiembre a Juan Jos\u00e9 Prieto, Coordinador de Zona de la Federaci\u00f3n Espa\u00f1ola de Enfermedades Raras (FEDER).<\/p>\n

El programa, dirigido por Antonio G. Armas, se emite cada jueves entre las 13 y las 14 horas en \u2018Gestiona Radio\u2019. En esta nueva temporada, que arranc\u00f3 el pasado jueves, el objetivo es aportar nuevos contenidos de alto valor a\u00f1adido a trav\u00e9s de entrevistas con expertos en la causa.<\/p>\n

Es por ello que la nueva etapa comenz\u00f3 de la mano del Coordinador manchego, quien traslad\u00f3 la labor que se lleva a cabo desde FEDER as\u00ed como los logros que se han producido en materia de unidad y representaci\u00f3n dentro del colectivo en nuestro pa\u00eds; un colectivo que suma m\u00e1s de tres millones de personas a nivel nacional.<\/p>\n

Y es que, como explic\u00f3 Prieto, \u00abdefender los derechos de los m\u00e1s de tres millones de personas que conviven con una ER en nuestro pa\u00eds supone luchar contra la descentralizaci\u00f3n que caracteriza a estas patolog\u00edas\u00bb. Por este motivo, FEDER ha prestado especial atenci\u00f3n a aquellas comunidades \u00abdonde no tenemos Delegaci\u00f3n, pero s\u00ed una gran representaci\u00f3n de la mano de los Coordinadores de Zona que se encargan de representar a las familias con ER y de proteger sus derechos, independientemente del lugar donde residan\u00bb.<\/span><\/span><\/p>\n

As\u00ed, \u00abhemos logrado cubrir todo el pa\u00eds a trav\u00e9s de las 7 Delegaciones en Andaluc\u00eda, Catalu\u00f1a, la Comunidad de Madrid, Comunidad Valenciana, Extremadura, Murcia y Pa\u00eds Vasco y los Coordinadores de Zona en las Comunidades Aut\u00f3nomas de Arag\u00f3n, Asturias, Cantabria, Castilla La Mancha, Castilla y Le\u00f3n, Ceuta, Galicia, Islas Baleares, Islas Canarias, La Rioja, Melilla y Navarra\u00bb desarroll\u00f3 el Coordinador manchego.<\/p>\n

El tambi\u00e9n miembro de la Junta Directiva de la asociaci\u00f3n albacete\u00f1a \u2018Conf\u00eda en ti\u2019 comparti\u00f3 espacio con la presidenta de dicha asociaci\u00f3n, Irene Carta, y \u00c1ngela Sevillando, directora de proyectos en la Fundaci\u00f3n Recover, para ofrecer una percepci\u00f3n global de la actualidad de las ER.<\/p>\n

Fuente: FEDER La labor de FEDER, protagonista en Gestiona Radio<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: El programa radiof\u00f3nico \u2018Enfermedades Raras\u2019 entrevist\u00f3 el pasado 8 de septiembre a Juan Jos\u00e9 Prieto, Coordinador de Zona de la Federaci\u00f3n Espa\u00f1ola de Enfermedades Raras (FEDER). El programa, dirigido por Antonio G. Armas, se emite cada jueves entre las 13 y las 14 horas […]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":"","_members_access_role":[],"_members_access_error":""},"categories":[8],"tags":[36],"class_list":["post-1936","post","type-post","status-publish","format-standard","hentry","category-noticias","tag-enfermedades-raras"],"yoast_head":"\nLa labor de FEDER, protagonista en Gestiona Radio - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/sindromecharge.es\/index.php\/2016\/09\/12\/la-labor-de-feder-protagonista-en-gestiona-radio\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"La labor de FEDER, protagonista en Gestiona Radio - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\" \/>\n<meta property=\"og:description\" content=\"Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: El programa radiof\u00f3nico \u2018Enfermedades Raras\u2019 entrevist\u00f3 el pasado 8 de septiembre a Juan Jos\u00e9 Prieto, Coordinador de Zona de la Federaci\u00f3n Espa\u00f1ola de Enfermedades Raras (FEDER). 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