{"id":1881,"date":"2016-08-05T06:13:57","date_gmt":"2016-08-05T06:13:57","guid":{"rendered":"http:\/\/sindromecharge.es\/index.php\/2016\/08\/05\/bikelive-pedalea-por-las-er-en-humanes-madrid\/"},"modified":"2016-08-05T06:13:57","modified_gmt":"2016-08-05T06:13:57","slug":"bikelive-pedalea-por-las-er-en-humanes-madrid","status":"publish","type":"post","link":"https:\/\/sindromecharge.es\/index.php\/2016\/08\/05\/bikelive-pedalea-por-las-er-en-humanes-madrid\/","title":{"rendered":"BikeLive! pedalea por las ER en Humanes (Madrid)"},"content":{"rendered":"<p>Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: <\/p>\n<p>El pr\u00f3ximo 10 de septiembre se celebra en el Parque Am\u00e9rica de Humanes (Madrid) el encuentro BIKE LIVE!, una cita solidaria con quienes conviven con enfermedades poco frecuentes.<\/p>\n<p>El equipo madrile\u00f1o invita a toda la sociedad a unirse a este evento y participar en las actividades que se desarrollar\u00e1n durante toda la jornada, con especial atenci\u00f3n al ciclo indoor que se desarrollar\u00e1 a partir de las 18 horas. En concreto, esta actividad constar\u00e1 de cuatro clases de unos 50 minutos cada una en las que los participantes se pueden inscribir tanto en dos de ellas como en las cuatro con un coste de 15 y 20 euros respectivamente.<\/p>\n<p>Una cuta que se destinar\u00e1 \u00edntegramente a una causa que mueve a m\u00e1s de tres millones de personas en nuestro pa\u00eds y que se canalizar\u00e1 a trav\u00e9s del trabajo que realiza la Federaci\u00f3n Espa\u00f1ola de Enfermedades Raras (FEDER). Es por ello que Juan Carri\u00f3n, Presidente de la organizaci\u00f3n, ha querido \u00absubrayar la importancia que este tipo de encuentros tiene para nuestro movimiento: por un lado, ampliando la visibilidad de una realidad cada vez m\u00e1s conocida en nuestra sociedad gracias a este tipo de actividades y, por otro, contribuyendo de forma directa a dar sostenibilidad a los recursos que brindamos a nuestras familias y a los que, de otro modo, no tendr\u00edan acceso\u00bb.<\/p>\n<p>En esta l\u00ednea, Carri\u00f3n ha querido \u00abagradecer expresamente a la organizaci\u00f3n el haber elegido a las personas con enfermedades raras como las protagonistas, haci\u00e9ndolas parte de este encuentro cuyo valor es a\u00fan mayor y significativo m\u00e1xime cuando atendemos a las dificultades a las que enfrentamos cuando hablamos de estas patolog\u00edas\u00bb.<\/p>\n<p>Por su parte, desde la organizaci\u00f3n vuelven a unir ciclo indoor, solidaridad y amistad e invitan a toda la sociedad a participar \u00aben una gran tarde con una gran causa como la de FEDER. Pedalearemos juntos por esas personas con enfermedades raras por las que FEDER vela a diario\u00bb. <\/p>\n<p>En la actualidad, las inscripciones se est\u00e1n realizando a trav\u00e9s del correo <a href=\"mailto:madrid@bikelive.es\">madrid@bikelive.es<\/a>, donde tambi\u00e9n se puede solicitar m\u00e1s informaci\u00f3n respecto al evento.<\/p>\n<p style=\"text-align: right\"><span style=\"text-decoration: underline\"><a href=\"https:\/\/www.facebook.com\/events\/1833460613548912\/\">\u00a1S\u00famate al evento en Facebook!<\/a><\/span><\/p>\n<p style=\"text-align: right\">05\/08\/2016.<\/p>\n<p>&nbsp;<\/p>\n<p>Fuente: FEDER <a href=\"http:\/\/www.enfermedades-raras.org\/index.php\/actualidad\/noticias-eventos\/2-feder\/6584-bikelive-pedalea-por-las-er-en-humanes-madrid\" target=\"_blank\">BikeLive! pedalea por las ER en Humanes (Madrid)<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: El pr\u00f3ximo 10 de septiembre se celebra en el Parque Am\u00e9rica de Humanes (Madrid) el encuentro BIKE LIVE!, una cita solidaria con quienes conviven con enfermedades poco frecuentes. El equipo madrile\u00f1o invita a toda la sociedad a unirse a este evento y participar [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":"","_members_access_role":[],"_members_access_error":""},"categories":[8],"tags":[36],"class_list":["post-1881","post","type-post","status-publish","format-standard","hentry","category-noticias","tag-enfermedades-raras"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.2 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>BikeLive! pedalea por las ER en Humanes (Madrid) - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/sindromecharge.es\/index.php\/2016\/08\/05\/bikelive-pedalea-por-las-er-en-humanes-madrid\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"BikeLive! pedalea por las ER en Humanes (Madrid) - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\" \/>\n<meta property=\"og:description\" content=\"Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: El pr\u00f3ximo 10 de septiembre se celebra en el Parque Am\u00e9rica de Humanes (Madrid) el encuentro BIKE LIVE!, una cita solidaria con quienes conviven con enfermedades poco frecuentes. 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