{"id":1680,"date":"2016-01-27T16:43:45","date_gmt":"2016-01-27T16:43:45","guid":{"rendered":"http:\/\/sindromecharge.es\/index.php\/2016\/01\/27\/feder-representa-en-londres-a-las-familias-con-er\/"},"modified":"2016-01-27T16:43:45","modified_gmt":"2016-01-27T16:43:45","slug":"feder-representa-en-londres-a-las-familias-con-er","status":"publish","type":"post","link":"https:\/\/sindromecharge.es\/index.php\/2016\/01\/27\/feder-representa-en-londres-a-las-familias-con-er\/","title":{"rendered":"FEDER representa en Londres a las familias con ER"},"content":{"rendered":"<p>Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: <\/p>\n<p>El 28 de enero se celebra la Reuni\u00f3n Europea de Enfermedades Raras (REACH: Research, Experience and Commitment to Healthcare \u2013 Investigaci\u00f3n, Experiencia y Compromiso con la salud). A esta cita ha acudido Alba Ancochea, Directora General de la Federaci\u00f3n Espa\u00f1ola de Enfermedades Raras (FEDER) con el fin de representar internacionalmente a los m\u00e1s de tres millones de personas que conviven con una enfermedad poco frecuente en nuestro pa\u00eds.<\/p>\n<p>La cita, que se desarrolla en Londres, tiene como objetivo reunir a grupos de pacientes, responsables pol\u00edticos, m\u00e9dicos y el equipo de la compa\u00f1\u00eda de investigaci\u00f3n biom\u00e9dica Pfizer, organizadora del encuentro. De esta forma, los expertos en enfermedades de baja prevalencia se encuentran en una cita \u00fanica para buscar un modelo de coordinaci\u00f3n capaz de dar respuesta a las necesidades y futuro de las personas con enfermedades raras.<\/p>\n<p>De esta forma, a trav\u00e9s de esta cita internacional, se analizar\u00e1 la situaci\u00f3n actual en lo que concierne a las enfermedades poco frecuentes atendiendo a los avances en investigaci\u00f3n e innovaci\u00f3n, tratamientos, estrategias de coordinaci\u00f3n o los principales retos a los que se enfrentan estas patolog\u00edas y, consecuentemente, las organizaciones y entidades que trabajan para mejorar el d\u00eda a d\u00eda de quienes conviven con ellas.<\/p>\n<p>Fuente: FEDER <a href=\"http:\/\/www.enfermedades-raras.org\/index.php\/actualidad\/noticias-eventos\/2-feder\/5340-rearch\" target=\"_blank\">FEDER representa en Londres a las familias con ER<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: El 28 de enero se celebra la Reuni\u00f3n Europea de Enfermedades Raras (REACH: Research, Experience and Commitment to Healthcare \u2013 Investigaci\u00f3n, Experiencia y Compromiso con la salud). A esta cita ha acudido Alba Ancochea, Directora General de la Federaci\u00f3n Espa\u00f1ola de Enfermedades Raras [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[8],"tags":[36],"class_list":["post-1680","post","type-post","status-publish","format-standard","hentry","category-noticias","tag-enfermedades-raras"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.4 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>FEDER representa en Londres a las familias con ER - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/sindromecharge.es\/index.php\/2016\/01\/27\/feder-representa-en-londres-a-las-familias-con-er\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"FEDER representa en Londres a las familias con ER - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\" \/>\n<meta property=\"og:description\" content=\"Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: El 28 de enero se celebra la Reuni\u00f3n Europea de Enfermedades Raras (REACH: Research, Experience and Commitment to Healthcare \u2013 Investigaci\u00f3n, Experiencia y Compromiso con la salud). A esta cita ha acudido Alba Ancochea, Directora General de la Federaci\u00f3n Espa\u00f1ola de Enfermedades Raras [&hellip;]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/sindromecharge.es\/index.php\/2016\/01\/27\/feder-representa-en-londres-a-las-familias-con-er\/\" \/>\n<meta property=\"og:site_name\" content=\"Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/asociacionsindromecharge\" \/>\n<meta property=\"article:published_time\" content=\"2016-01-27T16:43:45+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/sindromecharge.es\/wp-content\/uploads\/2013\/09\/logodecharge300x98.png\" \/>\n\t<meta property=\"og:image:width\" content=\"300\" \/>\n\t<meta property=\"og:image:height\" content=\"98\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"Charge\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@sindromecharge\" \/>\n<meta name=\"twitter:site\" content=\"@sindromecharge\" \/>\n<meta name=\"twitter:label1\" content=\"Escrito por\" \/>\n\t<meta name=\"twitter:data1\" content=\"Charge\" \/>\n\t<meta name=\"twitter:label2\" content=\"Tiempo de lectura\" \/>\n\t<meta name=\"twitter:data2\" content=\"1 minuto\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2016\\\/01\\\/27\\\/feder-representa-en-londres-a-las-familias-con-er\\\/#article\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2016\\\/01\\\/27\\\/feder-representa-en-londres-a-las-familias-con-er\\\/\"},\"author\":{\"name\":\"Charge\",\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/#\\\/schema\\\/person\\\/39a60ebe0a2b4d5a11179701e336b039\"},\"headline\":\"FEDER representa en Londres a las familias con ER\",\"datePublished\":\"2016-01-27T16:43:45+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2016\\\/01\\\/27\\\/feder-representa-en-londres-a-las-familias-con-er\\\/\"},\"wordCount\":251,\"commentCount\":0,\"keywords\":[\"enfermedades raras\"],\"articleSection\":[\"noticias\"],\"inLanguage\":\"es\",\"potentialAction\":[{\"@type\":\"CommentAction\",\"name\":\"Comment\",\"target\":[\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2016\\\/01\\\/27\\\/feder-representa-en-londres-a-las-familias-con-er\\\/#respond\"]}]},{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2016\\\/01\\\/27\\\/feder-representa-en-londres-a-las-familias-con-er\\\/\",\"url\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2016\\\/01\\\/27\\\/feder-representa-en-londres-a-las-familias-con-er\\\/\",\"name\":\"FEDER representa en Londres a las familias con ER - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/#website\"},\"datePublished\":\"2016-01-27T16:43:45+00:00\",\"author\":{\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/#\\\/schema\\\/person\\\/39a60ebe0a2b4d5a11179701e336b039\"},\"breadcrumb\":{\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2016\\\/01\\\/27\\\/feder-representa-en-londres-a-las-familias-con-er\\\/#breadcrumb\"},\"inLanguage\":\"es\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2016\\\/01\\\/27\\\/feder-representa-en-londres-a-las-familias-con-er\\\/\"]}]},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2016\\\/01\\\/27\\\/feder-representa-en-londres-a-las-familias-con-er\\\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Portada\",\"item\":\"https:\\\/\\\/sindromecharge.es\\\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"FEDER representa en Londres a las familias con ER\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/#website\",\"url\":\"https:\\\/\\\/sindromecharge.es\\\/\",\"name\":\"Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\",\"description\":\"\",\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\\\/\\\/sindromecharge.es\\\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"es\"},{\"@type\":\"Person\",\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/#\\\/schema\\\/person\\\/39a60ebe0a2b4d5a11179701e336b039\",\"name\":\"Charge\",\"image\":{\"@type\":\"ImageObject\",\"inLanguage\":\"es\",\"@id\":\"https:\\\/\\\/secure.gravatar.com\\\/avatar\\\/c3b46e32a0fc3b093a0873fb767bf3293de856293065e84ef06b7ec7a8acfb98?s=96&d=identicon&r=x\",\"url\":\"https:\\\/\\\/secure.gravatar.com\\\/avatar\\\/c3b46e32a0fc3b093a0873fb767bf3293de856293065e84ef06b7ec7a8acfb98?s=96&d=identicon&r=x\",\"contentUrl\":\"https:\\\/\\\/secure.gravatar.com\\\/avatar\\\/c3b46e32a0fc3b093a0873fb767bf3293de856293065e84ef06b7ec7a8acfb98?s=96&d=identicon&r=x\",\"caption\":\"Charge\"},\"url\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/author\\\/admin\\\/\"}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"FEDER representa en Londres a las familias con ER - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/sindromecharge.es\/index.php\/2016\/01\/27\/feder-representa-en-londres-a-las-familias-con-er\/","og_locale":"es_ES","og_type":"article","og_title":"FEDER representa en Londres a las familias con ER - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge","og_description":"Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: El 28 de enero se celebra la Reuni\u00f3n Europea de Enfermedades Raras (REACH: Research, Experience and Commitment to Healthcare \u2013 Investigaci\u00f3n, Experiencia y Compromiso con la salud). A esta cita ha acudido Alba Ancochea, Directora General de la Federaci\u00f3n Espa\u00f1ola de Enfermedades Raras [&hellip;]","og_url":"https:\/\/sindromecharge.es\/index.php\/2016\/01\/27\/feder-representa-en-londres-a-las-familias-con-er\/","og_site_name":"Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge","article_publisher":"https:\/\/www.facebook.com\/asociacionsindromecharge","article_published_time":"2016-01-27T16:43:45+00:00","og_image":[{"width":300,"height":98,"url":"https:\/\/sindromecharge.es\/wp-content\/uploads\/2013\/09\/logodecharge300x98.png","type":"image\/png"}],"author":"Charge","twitter_card":"summary_large_image","twitter_creator":"@sindromecharge","twitter_site":"@sindromecharge","twitter_misc":{"Escrito por":"Charge","Tiempo de lectura":"1 minuto"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/sindromecharge.es\/index.php\/2016\/01\/27\/feder-representa-en-londres-a-las-familias-con-er\/#article","isPartOf":{"@id":"https:\/\/sindromecharge.es\/index.php\/2016\/01\/27\/feder-representa-en-londres-a-las-familias-con-er\/"},"author":{"name":"Charge","@id":"https:\/\/sindromecharge.es\/#\/schema\/person\/39a60ebe0a2b4d5a11179701e336b039"},"headline":"FEDER representa en Londres a las familias con ER","datePublished":"2016-01-27T16:43:45+00:00","mainEntityOfPage":{"@id":"https:\/\/sindromecharge.es\/index.php\/2016\/01\/27\/feder-representa-en-londres-a-las-familias-con-er\/"},"wordCount":251,"commentCount":0,"keywords":["enfermedades raras"],"articleSection":["noticias"],"inLanguage":"es","potentialAction":[{"@type":"CommentAction","name":"Comment","target":["https:\/\/sindromecharge.es\/index.php\/2016\/01\/27\/feder-representa-en-londres-a-las-familias-con-er\/#respond"]}]},{"@type":"WebPage","@id":"https:\/\/sindromecharge.es\/index.php\/2016\/01\/27\/feder-representa-en-londres-a-las-familias-con-er\/","url":"https:\/\/sindromecharge.es\/index.php\/2016\/01\/27\/feder-representa-en-londres-a-las-familias-con-er\/","name":"FEDER representa en Londres a las familias con ER - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge","isPartOf":{"@id":"https:\/\/sindromecharge.es\/#website"},"datePublished":"2016-01-27T16:43:45+00:00","author":{"@id":"https:\/\/sindromecharge.es\/#\/schema\/person\/39a60ebe0a2b4d5a11179701e336b039"},"breadcrumb":{"@id":"https:\/\/sindromecharge.es\/index.php\/2016\/01\/27\/feder-representa-en-londres-a-las-familias-con-er\/#breadcrumb"},"inLanguage":"es","potentialAction":[{"@type":"ReadAction","target":["https:\/\/sindromecharge.es\/index.php\/2016\/01\/27\/feder-representa-en-londres-a-las-familias-con-er\/"]}]},{"@type":"BreadcrumbList","@id":"https:\/\/sindromecharge.es\/index.php\/2016\/01\/27\/feder-representa-en-londres-a-las-familias-con-er\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Portada","item":"https:\/\/sindromecharge.es\/"},{"@type":"ListItem","position":2,"name":"FEDER representa en Londres a las familias con ER"}]},{"@type":"WebSite","@id":"https:\/\/sindromecharge.es\/#website","url":"https:\/\/sindromecharge.es\/","name":"Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge","description":"","potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/sindromecharge.es\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"es"},{"@type":"Person","@id":"https:\/\/sindromecharge.es\/#\/schema\/person\/39a60ebe0a2b4d5a11179701e336b039","name":"Charge","image":{"@type":"ImageObject","inLanguage":"es","@id":"https:\/\/secure.gravatar.com\/avatar\/c3b46e32a0fc3b093a0873fb767bf3293de856293065e84ef06b7ec7a8acfb98?s=96&d=identicon&r=x","url":"https:\/\/secure.gravatar.com\/avatar\/c3b46e32a0fc3b093a0873fb767bf3293de856293065e84ef06b7ec7a8acfb98?s=96&d=identicon&r=x","contentUrl":"https:\/\/secure.gravatar.com\/avatar\/c3b46e32a0fc3b093a0873fb767bf3293de856293065e84ef06b7ec7a8acfb98?s=96&d=identicon&r=x","caption":"Charge"},"url":"https:\/\/sindromecharge.es\/index.php\/author\/admin\/"}]}},"_links":{"self":[{"href":"https:\/\/sindromecharge.es\/index.php\/wp-json\/wp\/v2\/posts\/1680","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/sindromecharge.es\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/sindromecharge.es\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/sindromecharge.es\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/sindromecharge.es\/index.php\/wp-json\/wp\/v2\/comments?post=1680"}],"version-history":[{"count":0,"href":"https:\/\/sindromecharge.es\/index.php\/wp-json\/wp\/v2\/posts\/1680\/revisions"}],"wp:attachment":[{"href":"https:\/\/sindromecharge.es\/index.php\/wp-json\/wp\/v2\/media?parent=1680"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/sindromecharge.es\/index.php\/wp-json\/wp\/v2\/categories?post=1680"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/sindromecharge.es\/index.php\/wp-json\/wp\/v2\/tags?post=1680"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}