{"id":1675,"date":"2016-01-27T09:21:46","date_gmt":"2016-01-27T09:21:46","guid":{"rendered":"http:\/\/sindromecharge.es\/index.php\/2016\/01\/27\/feder-participa-en-un-debate-sobre-innovacion-terapeutica\/"},"modified":"2016-01-27T09:21:46","modified_gmt":"2016-01-27T09:21:46","slug":"feder-participa-en-un-debate-sobre-innovacion-terapeutica","status":"publish","type":"post","link":"https:\/\/sindromecharge.es\/index.php\/2016\/01\/27\/feder-participa-en-un-debate-sobre-innovacion-terapeutica\/","title":{"rendered":"FEDER participa en un debate sobre innovaci\u00f3n terap\u00e9utica"},"content":{"rendered":"<p>Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: <\/p>\n<p style=\"font-weight: normal;font-style: normal;font-size: 11.97px;line-height: 15.561px\">La Federaci\u00f3n Espa\u00f1ola de Enfermedades Raras (FEDER) participa hoy en la Jornada de Debate \u201cEl Valor de la Innovaci\u00f3n terap\u00e9utica en ER\u201d organizado por la Fundaci\u00f3n Bamberg. Concretamente, son Justo Herranz, Vocal de la Junta Directiva de la organizaci\u00f3n, Tom\u00e1s Castillo, quien ocupa el mismo cargo en la entidad adem\u00e1s de ser Presidente de la Plataforma de Organizaciones de Pacientes as\u00ed como de la Federaci\u00f3n Espa\u00f1ola de Fibrosis Qu\u00edstica.<\/p>\n<p style=\"font-weight: normal;font-style: normal;font-size: 11.97px;line-height: 15.561px\">Como resultado, esta jornada acoge a los m\u00e1ximos representantes de las Unidades Cl\u00ednicas, Sociedades Cient\u00edficas, Hospitales y Organizaciones de Pacientes relacionados con las enfermedades de baja prevalencia prestando especial atenci\u00f3n a la Fibrosis Qu\u00edstica.<\/p>\n<p style=\"font-weight: normal;font-style: normal;font-size: 11.97px;line-height: 15.561px\">Esta patolog\u00eda es uno de los tipos de enfermedad pulmonar cr\u00f3nica m\u00e1s com\u00fan en ni\u00f1os y adultos. Por eso, esta jornada est\u00e1 especialmente enfocada a estudiar y debatir sobre las condiciones necesarias para la generaci\u00f3n de la innovaci\u00f3n terap\u00e9utica de medicamentos para este tipo de enfermedades, la investigaci\u00f3n, los estudios cl\u00ednicos, la evaluaci\u00f3n de los resultados y los costes de innovaci\u00f3n. Asimismo, durante esta jornada de debate tambi\u00e9n se analizar\u00e1 la accesibilidad a los tratamientos terap\u00e9uticos y el presente y futuro de la innovaci\u00f3n en salud.<\/p>\n<p>Fuente: FEDER <a href=\"http:\/\/www.enfermedades-raras.org\/index.php\/actualidad\/noticias-eventos\/2-feder\/5327-feder-participa-en-un-debate-sobre-innovaci%C3%B3n-terap%C3%A9utica\" target=\"_blank\">FEDER participa en un debate sobre innovaci\u00f3n terap\u00e9utica<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: La Federaci\u00f3n Espa\u00f1ola de Enfermedades Raras (FEDER) participa hoy en la Jornada de Debate \u201cEl Valor de la Innovaci\u00f3n terap\u00e9utica en ER\u201d organizado por la Fundaci\u00f3n Bamberg. Concretamente, son Justo Herranz, Vocal de la Junta Directiva de la organizaci\u00f3n, Tom\u00e1s Castillo, quien ocupa [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[8],"tags":[36],"class_list":["post-1675","post","type-post","status-publish","format-standard","hentry","category-noticias","tag-enfermedades-raras"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.4 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>FEDER participa en un debate sobre innovaci\u00f3n terap\u00e9utica - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/sindromecharge.es\/index.php\/2016\/01\/27\/feder-participa-en-un-debate-sobre-innovacion-terapeutica\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"FEDER participa en un debate sobre innovaci\u00f3n terap\u00e9utica - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\" \/>\n<meta property=\"og:description\" content=\"Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: La Federaci\u00f3n Espa\u00f1ola de Enfermedades Raras (FEDER) participa hoy en la Jornada de Debate \u201cEl Valor de la Innovaci\u00f3n terap\u00e9utica en ER\u201d organizado por la Fundaci\u00f3n Bamberg. 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