{"id":1668,"date":"2016-01-22T08:06:13","date_gmt":"2016-01-22T08:06:13","guid":{"rendered":"http:\/\/sindromecharge.es\/index.php\/2016\/01\/22\/el-coordinador-de-feder-en-clm-acerca-las-er-a-los-jovenes\/"},"modified":"2016-01-22T08:06:13","modified_gmt":"2016-01-22T08:06:13","slug":"el-coordinador-de-feder-en-clm-acerca-las-er-a-los-jovenes","status":"publish","type":"post","link":"https:\/\/sindromecharge.es\/index.php\/2016\/01\/22\/el-coordinador-de-feder-en-clm-acerca-las-er-a-los-jovenes\/","title":{"rendered":"El Coordinador de FEDER en CLM acerca las ER a los j\u00f3venes"},"content":{"rendered":"

Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: <\/p>\n

Juan Jos\u00e9 Prieto, Coordinador de Zona de la Federaci\u00f3n Espa\u00f1ola de Enfermedades Raras (FEDER) en Castilla La Mancha acerca el 22 de enero la realidad de quienes conviven con una enfermedad poco frecuentes a los m\u00e1s j\u00f3venes. Bajo el t\u00edtulo \u2018Los retos del d\u00eda a d\u00eda en una persona con ER\u2019, los alumnos del IES Leonor de Guzm\u00e1n podr\u00e1n acercarse esta realidad.<\/p>\n

De esta forma, los menores de Villa de Don Fadrique (Toledo) conocer\u00e1n de la mano de la organizaci\u00f3n el contexto que viven los m\u00e1s de tres millones de personas que conviven con una enfermedad rara. A trav\u00e9s de esta intervenci\u00f3n, Prieto busca sensibilizar a los m\u00e1s j\u00f3venes de su pueblo natal, haciendo extensible su labor de coordinaci\u00f3n tambi\u00e9n a la acci\u00f3n social.<\/p>\n

Fuente: FEDER El Coordinador de FEDER en CLM acerca las ER a los j\u00f3venes<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: Juan Jos\u00e9 Prieto, Coordinador de Zona de la Federaci\u00f3n Espa\u00f1ola de Enfermedades Raras (FEDER) en Castilla La Mancha acerca el 22 de enero la realidad de quienes conviven con una enfermedad poco frecuentes a los m\u00e1s j\u00f3venes. Bajo el t\u00edtulo \u2018Los retos del […]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[8],"tags":[36],"class_list":["post-1668","post","type-post","status-publish","format-standard","hentry","category-noticias","tag-enfermedades-raras"],"yoast_head":"\nEl Coordinador de FEDER en CLM acerca las ER a los j\u00f3venes - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/sindromecharge.es\/index.php\/2016\/01\/22\/el-coordinador-de-feder-en-clm-acerca-las-er-a-los-jovenes\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"El Coordinador de FEDER en CLM acerca las ER a los j\u00f3venes - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\" \/>\n<meta property=\"og:description\" content=\"Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: Juan Jos\u00e9 Prieto, Coordinador de Zona de la Federaci\u00f3n Espa\u00f1ola de Enfermedades Raras (FEDER) en Castilla La Mancha acerca el 22 de enero la realidad de quienes conviven con una enfermedad poco frecuentes a los m\u00e1s j\u00f3venes. 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