{"id":1471,"date":"2015-11-13T11:18:48","date_gmt":"2015-11-13T11:18:48","guid":{"rendered":"http:\/\/sindromecharge.es\/index.php\/2015\/11\/13\/feder-se-acerca-a-las-familias-con-er-de-logrono\/"},"modified":"2015-11-13T11:18:48","modified_gmt":"2015-11-13T11:18:48","slug":"feder-se-acerca-a-las-familias-con-er-de-logrono","status":"publish","type":"post","link":"https:\/\/sindromecharge.es\/index.php\/2015\/11\/13\/feder-se-acerca-a-las-familias-con-er-de-logrono\/","title":{"rendered":"FEDER se acerca a las familias con ER de Logro\u00f1o"},"content":{"rendered":"

Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: <\/p>\n

Juan Carri\u00f3n, Presidente de la Federaci\u00f3n Espa\u00f1ola de Enfermedades Raras (FEDER), junto con Justo Herranz, Vocal de la Junta Directiva de FEDER y Responsable del Programa de Coordinadores de Zona, acompa\u00f1aron el 12 de noviembre a las familias que conviven con una Enfermedad Poco Frecuente en Logro\u00f1o.<\/p>\n

En este encuentro, FEDER mantuvo una reuni\u00f3n con los representantes de enfermedades poco frecuentes de esta regi\u00f3n y pudo conocer la realidad del colectivo en la ciudad as\u00ed como en La Rioja. De esta forma, Juan Carri\u00f3n quiso mostrar su compromiso con todas las familias con el fin de mejorar la atenci\u00f3n que la Federaci\u00f3n ofrece en esta regi\u00f3n y garantizar la cobertura de sus necesidades.<\/p>\n

De esta forma, la Federaci\u00f3n busca asegurar la atenci\u00f3n de todas las personas que conviven con una de estas patolog\u00edas a nivel nacional, acerc\u00e1ndose al d\u00eda a d\u00eda de cada una de estas personas, independientemente del lugar donde residan.<\/p>\n

Fuente: FEDER FEDER se acerca a las familias con ER de Logro\u00f1o<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: Juan Carri\u00f3n, Presidente de la Federaci\u00f3n Espa\u00f1ola de Enfermedades Raras (FEDER), junto con Justo Herranz, Vocal de la Junta Directiva de FEDER y Responsable del Programa de Coordinadores de Zona, acompa\u00f1aron el 12 de noviembre a las familias que conviven con una Enfermedad […]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":"","_members_access_role":[],"_members_access_error":""},"categories":[8],"tags":[36],"class_list":["post-1471","post","type-post","status-publish","format-standard","hentry","category-noticias","tag-enfermedades-raras"],"yoast_head":"\nFEDER se acerca a las familias con ER de Logro\u00f1o - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/sindromecharge.es\/index.php\/2015\/11\/13\/feder-se-acerca-a-las-familias-con-er-de-logrono\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"FEDER se acerca a las familias con ER de Logro\u00f1o - 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