{"id":11364,"date":"2025-07-28T06:40:32","date_gmt":"2025-07-28T06:40:32","guid":{"rendered":"https:\/\/sindromecharge.es\/index.php\/2025\/07\/28\/grupo-socialista-pide-valorar-discapacidad-las-personas-con-cardiopatia-congenita-adulto\/"},"modified":"2025-07-28T06:40:32","modified_gmt":"2025-07-28T06:40:32","slug":"grupo-socialista-pide-valorar-discapacidad-las-personas-con-cardiopatia-congenita-adulto","status":"publish","type":"post","link":"https:\/\/sindromecharge.es\/index.php\/2025\/07\/28\/grupo-socialista-pide-valorar-discapacidad-las-personas-con-cardiopatia-congenita-adulto\/","title":{"rendered":"Piden valorar la discapacidad a las personas con cardiopat\u00eda cong\u00e9nita del adulto"},"content":{"rendered":"

Leemos en Discapacidad la siguiente noticia que os reproducimos de forma \u00edntegra: <\/p>\n

\n

El Grupo Parlamentario Socialista <\/b>del Congreso de los Diputados ha presentado una proposici\u00f3n no de ley sobre la aplicaci\u00f3n del baremo de valoraci\u00f3n de la discapacidad<\/a><\/b> a las personas con cardiopat\u00eda cong\u00e9nita del adulto<\/b> para su debate en Pleno.<\/p>\n

En su exposici\u00f3n de motivos se explica que la cardiopat\u00eda \u00abes la enfermedad cong\u00e9nita m\u00e1s frecuente<\/b>, tiene lugar en uno de cada diez nacimientos diarios, unos 4.000 casos al a\u00f1o\u00bb.<\/p>\n

Se caracteriza por ser una patolog\u00eda cr\u00f3nica e irreversible <\/b>que implica menor esperanza de vida, mayor riesgo de muerte s\u00fabita, con una supervivencia en torno a los 53 a\u00f1os en pacientes con cardiopat\u00edas de alta complejidad.<\/p>\n

Adem\u00e1s, es una patolog\u00eda din\u00e1mica, ya que su evoluci\u00f3n a lo largo de la vida suele requerir varias cirug\u00edas card\u00edacas<\/b>, cateterismos, colocaci\u00f3n de marcapasos o desfibrilador autom\u00e1tico implantadle debido a las arritmias caracter\u00edsticas de esta enfermedad.<\/p>\n

A su vez, puede asociarse a trastornos de salud mental<\/b>, sobre todo en el caso de adolescentes. En Espa\u00f1a, el 90% de los pacientes llegan a edad adulta, mientras que en los a\u00f1os 80 el 90% de los enfermos de cardiopat\u00eda cong\u00e9nita mor\u00edan antes de los tres a\u00f1os.<\/p>\n

220.000 adultos en Espa\u00f1a<\/h2>\n

Se estima que hay alrededor de 200.000 adultos en Espa\u00f1a, mucho m\u00e1s que ni\u00f1os, debido a la mayor supervivencia y baja natalidad. En este sentido, esta situaci\u00f3n refleja el claro avance de nuestra sanidad p\u00fablica en los \u00faltimos 40 a\u00f1os.<\/p>\n

Aunque existen Unidades de Cardiopat\u00edas Cong\u00e9nitas de Adultos y asociaciones de pacientes como Menudos Corazones, Fundaci\u00f3n Carmen Chac\u00f3n o la Asociaci\u00f3n Coraz\u00f3n y Vida, el actual reto es avanzar hacia la consecuci\u00f3n de un reconocimiento<\/b>, en lo que se refiere a la discapacidad, acorde con la realidad del camino vital que estos pacientes recorren desde su nacimiento.<\/p>\n

De hecho, en la exposici\u00f3n de motivos de esta proposici\u00f3n no de ley se indica que \u00abes fundamental que puedan tener una valoraci\u00f3n objetiva y una adaptaci\u00f3n de su puesto de trabajo <\/b>con el fin \u00faltimo de que su desarrollo personal y profesional sea paralelo al del resto de los adultos y est\u00e9n incluidos en la sociedad como miembros de pleno derecho\u00bb.<\/p>\n

Por todo ello, el Grupo Parlamentario Socialista propone \u00abimpulsar, en colaboraci\u00f3n con las comunidades aut\u00f3nomas y entidades locales, en el \u00e1mbito de sus competencias, en el marco de la Comisi\u00f3n Estatal de Coordinaci\u00f3n y Seguimiento de la Valoraci\u00f3n del Grado de Discapacidad, un estudio relativo a la aplicaci\u00f3n del baremo de valoraci\u00f3n de la discapacidad <\/b>a las personas con cardiopat\u00eda cong\u00e9nita del adulto con la finalidad de detectar posibles problemas o disfunciones, as\u00ed como, en su caso, proponer medidas para solucionarlos\u00bb.<\/p>\n<\/div>\n

Fuente: Discapacidad https:\/\/www.20minutos.es\/noticia\/5734796\/0\/grupo-socialista-pide-valorar-discapacidad-las-personas-con-cardiopatia-congenita-adulto\/<\/p>\n","protected":false},"excerpt":{"rendered":"

Las cardiopat\u00edas son la enfermedad cong\u00e9nita m\u00e1s frecuente y afecta a unos 200.000 espa\u00f1oles.<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[8],"tags":[],"class_list":["post-11364","post","type-post","status-publish","format-standard","hentry","category-noticias"],"yoast_head":"\nPiden valorar la discapacidad a las personas con cardiopat\u00eda cong\u00e9nita del adulto - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/sindromecharge.es\/index.php\/2025\/07\/28\/grupo-socialista-pide-valorar-discapacidad-las-personas-con-cardiopatia-congenita-adulto\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Piden valorar la discapacidad a las personas con cardiopat\u00eda cong\u00e9nita del adulto - 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