{"id":11234,"date":"2025-06-17T03:55:56","date_gmt":"2025-06-17T03:55:56","guid":{"rendered":"https:\/\/sindromecharge.es\/index.php\/2025\/06\/17\/angel-aledo-neurologo-referente-epilepsias-geneticas-futuro-los-ninos-con-deficiencia-cdkl5-no-esta-escrito\/"},"modified":"2025-06-17T03:55:56","modified_gmt":"2025-06-17T03:55:56","slug":"angel-aledo-neurologo-referente-epilepsias-geneticas-futuro-los-ninos-con-deficiencia-cdkl5-no-esta-escrito","status":"publish","type":"post","link":"https:\/\/sindromecharge.es\/index.php\/2025\/06\/17\/angel-aledo-neurologo-referente-epilepsias-geneticas-futuro-los-ninos-con-deficiencia-cdkl5-no-esta-escrito\/","title":{"rendered":"\u00c1ngel Aledo, neur\u00f3logo experto en epilepsias gen\u00e9ticas: \u00abEl futuro de los ni\u00f1os con deficiencia de CDKL5 no est\u00e1 escrito\u00bb"},"content":{"rendered":"

Leemos en Discapacidad la siguiente noticia que os reproducimos de forma \u00edntegra: <\/p>\n

\n

El Hospital Infantil Universitario Ni\u00f1o Jes\u00fas de Madrid acoge este martes el I Congreso Nacional M\u00e9dico-Cient\u00edfico sobre CDKL5 y otras encefalopat\u00edas epil\u00e9pticas del desarrollo (EED)<\/b><\/a>, una cita pionera organizada por la Asociaci\u00f3n de Afectados CDKL5 Espa\u00f1a<\/a>. En este encuentro, que reunir\u00e1 a expertos en neurolog\u00eda, gen\u00e9tica e investigaci\u00f3n cl\u00ednica y traslacional, destaca la participaci\u00f3n del Dr. \u00c1ngel Aledo Serrano, referente en el \u00e1mbito de las epilepsias complejas y la neurogen\u00e9tica<\/b>. <\/p>\n

Hablamos con \u00e9l sobre los retos del diagn\u00f3stico precoz, la investigaci\u00f3n en enfermedades raras<\/a>, la importancia del trabajo conjunto con las familias y el papel de la divulgaci\u00f3n como forma de cuidado.<\/p>\n

La medicina de precisi\u00f3n no es el futuro, es el presente<\/h1>\n

Hay tratamientos mejores que antes<\/h1>\n<\/div>\n

Fuente: Discapacidad https:\/\/www.20minutos.es\/noticia\/5722449\/0\/angel-aledo-neurologo-referente-epilepsias-geneticas-futuro-los-ninos-con-deficiencia-cdkl5-no-esta-escrito\/<\/p>\n","protected":false},"excerpt":{"rendered":"

Destaca la importancia de un diagn\u00f3stico precoz, la colaboraci\u00f3n entre familias y profesionales sanitarios.<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[8],"tags":[],"class_list":["post-11234","post","type-post","status-publish","format-standard","hentry","category-noticias"],"yoast_head":"\n\u00c1ngel Aledo, neur\u00f3logo experto en epilepsias gen\u00e9ticas: "El futuro de los ni\u00f1os con deficiencia de CDKL5 no est\u00e1 escrito" - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/sindromecharge.es\/index.php\/2025\/06\/17\/angel-aledo-neurologo-referente-epilepsias-geneticas-futuro-los-ninos-con-deficiencia-cdkl5-no-esta-escrito\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"\u00c1ngel Aledo, neur\u00f3logo experto en epilepsias gen\u00e9ticas: "El futuro de los ni\u00f1os con deficiencia de CDKL5 no est\u00e1 escrito" - 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