{"id":10669,"date":"2024-12-18T06:36:22","date_gmt":"2024-12-18T06:36:22","guid":{"rendered":"https:\/\/sindromecharge.es\/index.php\/2024\/12\/18\/ana-torredemer-esclerosis-multiple-espana-cuando-diagnosticaron-mi-hija-habia-dos-tratamientos-ahora-hay-mas-10\/"},"modified":"2024-12-18T06:36:22","modified_gmt":"2024-12-18T06:36:22","slug":"ana-torredemer-esclerosis-multiple-espana-cuando-diagnosticaron-mi-hija-habia-dos-tratamientos-ahora-hay-mas-10","status":"publish","type":"post","link":"https:\/\/sindromecharge.es\/index.php\/2024\/12\/18\/ana-torredemer-esclerosis-multiple-espana-cuando-diagnosticaron-mi-hija-habia-dos-tratamientos-ahora-hay-mas-10\/","title":{"rendered":"Ana Torredemer, presidenta de Esclerosis M\u00faltiple Espa\u00f1a: \u00abHemos recaudado m\u00e1s de 1,5 millones para la investigaci\u00f3n en 10 a\u00f1os\u00bb"},"content":{"rendered":"

Leemos en Discapacidad la siguiente noticia que os reproducimos de forma \u00edntegra: <\/p>\n

\n

En Espa\u00f1a hay casi 60.000 personas diagnosticadas con esclerosis m\u00faltiple<\/a>, una enfermedad neurodegenerativa<\/b>, que se diagnostica casi siempre antes de los 30 a\u00f1os y que no tiene ni cura ni causa conocida. Si la enfermedad sigue su curso, puede llegar a ser muy incapacitante<\/b>, pero gracias a la investigaci\u00f3n y a los avances que han surgido en los \u00faltimos 20 a\u00f1os, la calidad de vida de las personas con esta enfermedad ha mejorado sensiblemente.<\/p>\n

Aunque los avances son notables, y se espera que vengan muchos m\u00e1s en los pr\u00f3ximos a\u00f1os, todav\u00eda queda mucho por hacer y por reivindicar, y en esa lucha est\u00e1n entidades como Esclerosis M\u00faltiple Espa\u00f1a<\/a> (EME)<\/b>, una federaci\u00f3n de asociaciones repartidas por toda Espa\u00f1a que pelean cada d\u00eda por mejorar la vida de los pacientes y sus familias. Su presidenta, que es adem\u00e1s vicepresidenta de la Federaci\u00f3n Internacional de Esclerosis M\u00faltiple (MSIF)<\/b> y madre de una persona con la enfermedad<\/b>, nos habla de la enorme tarea que a\u00fan tenemos por delante. <\/p>\n

Cuando diagnosticaron a mi hija hab\u00eda dos tratamientos, ahora hay m\u00e1s de diez<\/h1>\n

Espa\u00f1a no cuenta con un Registro de Esclerosis M\u00faltiple, ni estudios epidemiol\u00f3gicos que muestren la realidad de la EM<\/h1>\n

Los dos grandes retos son averiguar la causa primaria de la enfermedad y encontrar la manera de poder recuperar la mielina<\/h1>\n<\/div>\n

Fuente: Discapacidad https:\/\/www.20minutos.es\/noticia\/5663859\/0\/ana-torredemer-esclerosis-multiple-espana-cuando-diagnosticaron-mi-hija-habia-dos-tratamientos-ahora-hay-mas-10\/<\/p>\n","protected":false},"excerpt":{"rendered":"

Torredemer es presidenta de Esclerosis M\u00faltiple Espa\u00f1a y vicepresidenta de la Federaci\u00f3n Internacional de Esclerosis M\u00faltiple (MSIF) es madre de una persona con la enfermedad, cuyo d\u00eda se celebra este 18 de diciembre.<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[8],"tags":[],"class_list":["post-10669","post","type-post","status-publish","format-standard","hentry","category-noticias"],"yoast_head":"\nAna Torredemer, presidenta de Esclerosis M\u00faltiple Espa\u00f1a: "Hemos recaudado m\u00e1s de 1,5 millones para la investigaci\u00f3n en 10 a\u00f1os" - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/sindromecharge.es\/index.php\/2024\/12\/18\/ana-torredemer-esclerosis-multiple-espana-cuando-diagnosticaron-mi-hija-habia-dos-tratamientos-ahora-hay-mas-10\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Ana Torredemer, presidenta de Esclerosis M\u00faltiple Espa\u00f1a: "Hemos recaudado m\u00e1s de 1,5 millones para la investigaci\u00f3n en 10 a\u00f1os" - 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