{"id":10585,"date":"2024-11-21T06:20:28","date_gmt":"2024-11-21T06:20:28","guid":{"rendered":"https:\/\/sindromecharge.es\/index.php\/2024\/11\/21\/javier-saceda-espina-bifida-la-cirugia-fetal-ha-mejorado-mucho-el-pronostico-motor-y-cognitivo\/"},"modified":"2024-11-21T06:20:28","modified_gmt":"2024-11-21T06:20:28","slug":"javier-saceda-espina-bifida-la-cirugia-fetal-ha-mejorado-mucho-el-pronostico-motor-y-cognitivo","status":"publish","type":"post","link":"https:\/\/sindromecharge.es\/index.php\/2024\/11\/21\/javier-saceda-espina-bifida-la-cirugia-fetal-ha-mejorado-mucho-el-pronostico-motor-y-cognitivo\/","title":{"rendered":"Javier Saceda sobre la espina b\u00edfida: \u00abLa cirug\u00eda fetal ha mejorado mucho el pron\u00f3stico motor y cognitivo\u00bb"},"content":{"rendered":"

Leemos en Discapacidad la siguiente noticia que os reproducimos de forma \u00edntegra: <\/p>\n

\n

La espina b\u00edfida<\/b> es una malformaci\u00f3n cong\u00e9nita del tubo neural<\/b> que afecta a la columna vertebral y la m\u00e9dula espinal, resultando en una abertura o fisura<\/b> en la parte inferior de la columna. Esta condici\u00f3n se desarrolla en el primer mes de embarazo, cuando el tubo neural no se cierra adecuadamente<\/b>, lo que puede generar una serie de complicaciones f\u00edsicas y neurol\u00f3gicas<\/b>. Dependiendo de la severidad, la espina b\u00edfida puede causar desde leves dificultades motoras hasta par\u00e1lisis parcial o total de las extremidades inferiores, problemas de control de la vejiga y otros desaf\u00edos que derivan en discapacidad<\/a>.<\/p>\n

Cada 21 de noviembre<\/b>, el D\u00eda Mundial de la Espina B\u00edfida<\/b> se celebra para aumentar la conciencia <\/b>sobre esta enfermedad, promover su diagn\u00f3stico temprano<\/b> y destacar los avances en tratamiento y apoyo a las personas afectadas. Este d\u00eda es una oportunidad para divulgar <\/b>a la sociedad, apoyar a las familias y profesionales m\u00e9dicos, y difundir informaci\u00f3n clave sobre la prevenci\u00f3n y manejo de la espina b\u00edfida.<\/p>\n

El neurocirujano Javier Saceda<\/b> es el Coordinador de Neurocirug\u00eda Pedi\u00e1trica del Hospital Universitario La Paz<\/b>.<\/p>\n

El diagn\u00f3stico precoz es clave; la espina b\u00edfida ocurre entre la tercera y cuarta semana de gestaci\u00f3n, pero el diagn\u00f3stico no se hace antes de la semana 14 a la 18<\/h1>\n

En el momento que el ni\u00f1o nace, el tejido nervioso queda expuesto al exterior, lo que conlleva un riesgo de infecci\u00f3n o meningitis<\/h1>\n

No todas las familias son candidatas. Se hace un estudio gen\u00e9tico mediante amniocentesis, si hay alguna alteraci\u00f3n cromos\u00f3mica o una malformaci\u00f3n no se consideran adecuados para la cirug\u00eda fetal<\/h1>\n

Lo ideal ser\u00eda la prevenci\u00f3n primaria, es decir, que no se produzca. Porque cuando ya se produce, por mucho que nos esforcemos y avancemos en muchos campos de la medicina, nunca vamos a superar a la naturaleza<\/h1>\n<\/div>\n

Fuente: Discapacidad https:\/\/www.20minutos.es\/noticia\/5655619\/0\/javier-saceda-espina-bifida-la-cirugia-fetal-ha-mejorado-mucho-el-pronostico-motor-y-cognitivo\/<\/p>\n","protected":false},"excerpt":{"rendered":"

La espina b\u00edfida es una malformaci\u00f3n cong\u00e9nita del tubo neural que afecta a la columna vertebral y la m\u00e9dula espinal, resultando en una abertura o fisura…<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[8],"tags":[],"class_list":["post-10585","post","type-post","status-publish","format-standard","hentry","category-noticias"],"yoast_head":"\nJavier Saceda sobre la espina b\u00edfida: "La cirug\u00eda fetal ha mejorado mucho el pron\u00f3stico motor y cognitivo" - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/sindromecharge.es\/index.php\/2024\/11\/21\/javier-saceda-espina-bifida-la-cirugia-fetal-ha-mejorado-mucho-el-pronostico-motor-y-cognitivo\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Javier Saceda sobre la espina b\u00edfida: "La cirug\u00eda fetal ha mejorado mucho el pron\u00f3stico motor y cognitivo" - 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