{"id":10463,"date":"2024-10-20T06:33:17","date_gmt":"2024-10-20T06:33:17","guid":{"rendered":"https:\/\/sindromecharge.es\/index.php\/2024\/10\/20\/josele-ferre-padre-que-corria-por-su-hija-con-sindrome-rett-otra-manera-sigo-empujando-carro\/"},"modified":"2024-10-20T06:33:17","modified_gmt":"2024-10-20T06:33:17","slug":"josele-ferre-padre-que-corria-por-su-hija-con-sindrome-rett-otra-manera-sigo-empujando-carro","status":"publish","type":"post","link":"https:\/\/sindromecharge.es\/index.php\/2024\/10\/20\/josele-ferre-padre-que-corria-por-su-hija-con-sindrome-rett-otra-manera-sigo-empujando-carro\/","title":{"rendered":"Josele Ferr\u00e9, cuando la vida es una marat\u00f3n sin fin: \u00abDe otra manera, pero sigo empujando el carro de Mar\u00eda\u00bb"},"content":{"rendered":"<p>Leemos en Discapacidad la siguiente noticia que os reproducimos de forma \u00edntegra: <\/p>\n<div>\n<p>La lucha de Josele y su familia empez\u00f3 hace casi 25 a\u00f1os, cuando diagnosticaron a su hija Mar\u00eda de <a href=\"https:\/\/www.20minutos.es\/minuteca\/sindrome-de-rett\/\" title=\"S\u00edndrome de Rett\" target=\"_blank\" rel=\"noopener\">S\u00edndrome de Rett<\/a>, una <a href=\"https:\/\/www.20minutos.es\/salud\/minuteca\/enfermedades-raras\/\" title=\"Enfermedades raras\" target=\"_blank\" rel=\"noopener\">enfermedad rara<\/a> que afecta casi exclusivamente las ni\u00f1as,<b> provoca una <a href=\"https:\/\/www.20minutos.es\/minuteca\/discapacidad\/\" title=\"Discapacidad\" target=\"_blank\" rel=\"noopener\">discapacidad<\/a> grave<\/b> y afecta a casi todos los aspectos de la vida, como hablar, andar, comer e incluso respirar. Josele Ferr\u00e9, que siempre ha sido un deportista nato, empez\u00f3 a correr empujando el carro de su hija cuando ella ten\u00eda apenas ocho, y al ver c\u00f3mo disfrutaba, empez\u00f3 a llev\u00e1rsela a las maratones que realizaba. <\/p>\n<p>Y as\u00ed, zancada a zancada, consigui\u00f3, no solo hacer feliz a su hija, sino visibilizar una enfermedad que casi nadie conoc\u00eda y que consigui\u00f3 reflejar en el documental <i><a href=\"https:\/\/www.20minutos.es\/capaces\/blogs\/madrereciente\/linea-meta-un-documental-con-que-las-enfermedades-raras-correr-por-ellas-llegan-los-premios-goya-5546667\/\" target=\"_blank\" rel=\"noopener\">L\u00ednea de meta<\/a><\/i>, que lleg\u00f3 hasta los<a href=\"https:\/\/www.20minutos.es\/cinemania\/minuteca\/premios-goya\/\" title=\"Premios Goya\" target=\"_blank\" rel=\"noopener\"> Goya<\/a>. Ahora, con Mar\u00eda con 25 a\u00f1os y unos a\u00f1os m\u00e1s a la espalda, corre menos y con menos energ\u00eda que hace 15 a\u00f1os, pero sus ganas de empujar el carro para mejora la vida de las ni\u00f1as con Rett siguen siendo las mismas.<\/p>\n<h1>La energ\u00eda vital que yo ten\u00eda y sent\u00eda en aquel momento, cuando corr\u00eda, ya no la tengo, pero la sensaci\u00f3n de haber hecho todo aquello s\u00ed queda <\/h1>\n<h1>Si las administraciones hicieran las cosas bien, las asociaciones de familias no tendr\u00edamos que existir, deber\u00edamos dedicarnos a cuidar a nuestros hijos<\/h1>\n<\/div>\n<p>Fuente: Discapacidad https:\/\/www.20minutos.es\/noticia\/5645139\/0\/josele-ferre-padre-que-corria-por-su-hija-con-sindrome-rett-otra-manera-sigo-empujando-carro\/<\/p>\n","protected":false},"excerpt":{"rendered":"<p>La historia de Josele Ferre y Mar\u00eda fue contada en el documental, &#8216;L\u00ednea de meta&#8217;, que lleg\u00f3 hasta los Goya.<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[8],"tags":[],"class_list":["post-10463","post","type-post","status-publish","format-standard","hentry","category-noticias"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.5 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Josele Ferr\u00e9, cuando la vida es una marat\u00f3n sin fin: &quot;De otra manera, pero sigo empujando el carro de Mar\u00eda&quot; - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/sindromecharge.es\/index.php\/2024\/10\/20\/josele-ferre-padre-que-corria-por-su-hija-con-sindrome-rett-otra-manera-sigo-empujando-carro\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Josele Ferr\u00e9, cuando la vida es una marat\u00f3n sin fin: &quot;De otra manera, pero sigo empujando el carro de Mar\u00eda&quot; - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\" \/>\n<meta property=\"og:description\" content=\"La historia de Josele Ferre y Mar\u00eda fue contada en el documental, &#8216;L\u00ednea de meta&#8217;, que lleg\u00f3 hasta los Goya.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/sindromecharge.es\/index.php\/2024\/10\/20\/josele-ferre-padre-que-corria-por-su-hija-con-sindrome-rett-otra-manera-sigo-empujando-carro\/\" \/>\n<meta property=\"og:site_name\" content=\"Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/asociacionsindromecharge\" \/>\n<meta property=\"article:published_time\" content=\"2024-10-20T06:33:17+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/sindromecharge.es\/wp-content\/uploads\/2013\/09\/logodecharge300x98.png\" \/>\n\t<meta property=\"og:image:width\" content=\"300\" \/>\n\t<meta property=\"og:image:height\" content=\"98\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"Charge\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@sindromecharge\" \/>\n<meta name=\"twitter:site\" content=\"@sindromecharge\" \/>\n<meta name=\"twitter:label1\" content=\"Escrito por\" \/>\n\t<meta name=\"twitter:data1\" content=\"Charge\" \/>\n\t<meta name=\"twitter:label2\" content=\"Tiempo de lectura\" \/>\n\t<meta name=\"twitter:data2\" content=\"1 minuto\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2024\\\/10\\\/20\\\/josele-ferre-padre-que-corria-por-su-hija-con-sindrome-rett-otra-manera-sigo-empujando-carro\\\/#article\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2024\\\/10\\\/20\\\/josele-ferre-padre-que-corria-por-su-hija-con-sindrome-rett-otra-manera-sigo-empujando-carro\\\/\"},\"author\":{\"name\":\"Charge\",\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/#\\\/schema\\\/person\\\/39a60ebe0a2b4d5a11179701e336b039\"},\"headline\":\"Josele Ferr\u00e9, cuando la vida es una marat\u00f3n sin fin: \u00abDe otra manera, pero sigo empujando el carro de Mar\u00eda\u00bb\",\"datePublished\":\"2024-10-20T06:33:17+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2024\\\/10\\\/20\\\/josele-ferre-padre-que-corria-por-su-hija-con-sindrome-rett-otra-manera-sigo-empujando-carro\\\/\"},\"wordCount\":278,\"articleSection\":[\"noticias\"],\"inLanguage\":\"es\"},{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2024\\\/10\\\/20\\\/josele-ferre-padre-que-corria-por-su-hija-con-sindrome-rett-otra-manera-sigo-empujando-carro\\\/\",\"url\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2024\\\/10\\\/20\\\/josele-ferre-padre-que-corria-por-su-hija-con-sindrome-rett-otra-manera-sigo-empujando-carro\\\/\",\"name\":\"Josele Ferr\u00e9, cuando la vida es una marat\u00f3n sin fin: \\\"De otra manera, pero sigo empujando el carro de Mar\u00eda\\\" - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/#website\"},\"datePublished\":\"2024-10-20T06:33:17+00:00\",\"author\":{\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/#\\\/schema\\\/person\\\/39a60ebe0a2b4d5a11179701e336b039\"},\"breadcrumb\":{\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2024\\\/10\\\/20\\\/josele-ferre-padre-que-corria-por-su-hija-con-sindrome-rett-otra-manera-sigo-empujando-carro\\\/#breadcrumb\"},\"inLanguage\":\"es\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2024\\\/10\\\/20\\\/josele-ferre-padre-que-corria-por-su-hija-con-sindrome-rett-otra-manera-sigo-empujando-carro\\\/\"]}]},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2024\\\/10\\\/20\\\/josele-ferre-padre-que-corria-por-su-hija-con-sindrome-rett-otra-manera-sigo-empujando-carro\\\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Portada\",\"item\":\"https:\\\/\\\/sindromecharge.es\\\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"Josele Ferr\u00e9, cuando la vida es una marat\u00f3n sin fin: &#8220;De otra manera, pero sigo empujando el carro de Mar\u00eda&#8221;\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/#website\",\"url\":\"https:\\\/\\\/sindromecharge.es\\\/\",\"name\":\"Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\",\"description\":\"\",\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\\\/\\\/sindromecharge.es\\\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"es\"},{\"@type\":\"Person\",\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/#\\\/schema\\\/person\\\/39a60ebe0a2b4d5a11179701e336b039\",\"name\":\"Charge\",\"image\":{\"@type\":\"ImageObject\",\"inLanguage\":\"es\",\"@id\":\"https:\\\/\\\/secure.gravatar.com\\\/avatar\\\/c3b46e32a0fc3b093a0873fb767bf3293de856293065e84ef06b7ec7a8acfb98?s=96&d=identicon&r=x\",\"url\":\"https:\\\/\\\/secure.gravatar.com\\\/avatar\\\/c3b46e32a0fc3b093a0873fb767bf3293de856293065e84ef06b7ec7a8acfb98?s=96&d=identicon&r=x\",\"contentUrl\":\"https:\\\/\\\/secure.gravatar.com\\\/avatar\\\/c3b46e32a0fc3b093a0873fb767bf3293de856293065e84ef06b7ec7a8acfb98?s=96&d=identicon&r=x\",\"caption\":\"Charge\"},\"url\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/author\\\/admin\\\/\"}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"Josele Ferr\u00e9, cuando la vida es una marat\u00f3n sin fin: \"De otra manera, pero sigo empujando el carro de Mar\u00eda\" - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/sindromecharge.es\/index.php\/2024\/10\/20\/josele-ferre-padre-que-corria-por-su-hija-con-sindrome-rett-otra-manera-sigo-empujando-carro\/","og_locale":"es_ES","og_type":"article","og_title":"Josele Ferr\u00e9, cuando la vida es una marat\u00f3n sin fin: \"De otra manera, pero sigo empujando el carro de Mar\u00eda\" - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge","og_description":"La historia de Josele Ferre y Mar\u00eda fue contada en el documental, &#8216;L\u00ednea de meta&#8217;, que lleg\u00f3 hasta los Goya.","og_url":"https:\/\/sindromecharge.es\/index.php\/2024\/10\/20\/josele-ferre-padre-que-corria-por-su-hija-con-sindrome-rett-otra-manera-sigo-empujando-carro\/","og_site_name":"Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge","article_publisher":"https:\/\/www.facebook.com\/asociacionsindromecharge","article_published_time":"2024-10-20T06:33:17+00:00","og_image":[{"width":300,"height":98,"url":"https:\/\/sindromecharge.es\/wp-content\/uploads\/2013\/09\/logodecharge300x98.png","type":"image\/png"}],"author":"Charge","twitter_card":"summary_large_image","twitter_creator":"@sindromecharge","twitter_site":"@sindromecharge","twitter_misc":{"Escrito por":"Charge","Tiempo de lectura":"1 minuto"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/sindromecharge.es\/index.php\/2024\/10\/20\/josele-ferre-padre-que-corria-por-su-hija-con-sindrome-rett-otra-manera-sigo-empujando-carro\/#article","isPartOf":{"@id":"https:\/\/sindromecharge.es\/index.php\/2024\/10\/20\/josele-ferre-padre-que-corria-por-su-hija-con-sindrome-rett-otra-manera-sigo-empujando-carro\/"},"author":{"name":"Charge","@id":"https:\/\/sindromecharge.es\/#\/schema\/person\/39a60ebe0a2b4d5a11179701e336b039"},"headline":"Josele Ferr\u00e9, cuando la vida es una marat\u00f3n sin fin: \u00abDe otra manera, pero sigo empujando el carro de Mar\u00eda\u00bb","datePublished":"2024-10-20T06:33:17+00:00","mainEntityOfPage":{"@id":"https:\/\/sindromecharge.es\/index.php\/2024\/10\/20\/josele-ferre-padre-que-corria-por-su-hija-con-sindrome-rett-otra-manera-sigo-empujando-carro\/"},"wordCount":278,"articleSection":["noticias"],"inLanguage":"es"},{"@type":"WebPage","@id":"https:\/\/sindromecharge.es\/index.php\/2024\/10\/20\/josele-ferre-padre-que-corria-por-su-hija-con-sindrome-rett-otra-manera-sigo-empujando-carro\/","url":"https:\/\/sindromecharge.es\/index.php\/2024\/10\/20\/josele-ferre-padre-que-corria-por-su-hija-con-sindrome-rett-otra-manera-sigo-empujando-carro\/","name":"Josele Ferr\u00e9, cuando la vida es una marat\u00f3n sin fin: \"De otra manera, pero sigo empujando el carro de Mar\u00eda\" - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge","isPartOf":{"@id":"https:\/\/sindromecharge.es\/#website"},"datePublished":"2024-10-20T06:33:17+00:00","author":{"@id":"https:\/\/sindromecharge.es\/#\/schema\/person\/39a60ebe0a2b4d5a11179701e336b039"},"breadcrumb":{"@id":"https:\/\/sindromecharge.es\/index.php\/2024\/10\/20\/josele-ferre-padre-que-corria-por-su-hija-con-sindrome-rett-otra-manera-sigo-empujando-carro\/#breadcrumb"},"inLanguage":"es","potentialAction":[{"@type":"ReadAction","target":["https:\/\/sindromecharge.es\/index.php\/2024\/10\/20\/josele-ferre-padre-que-corria-por-su-hija-con-sindrome-rett-otra-manera-sigo-empujando-carro\/"]}]},{"@type":"BreadcrumbList","@id":"https:\/\/sindromecharge.es\/index.php\/2024\/10\/20\/josele-ferre-padre-que-corria-por-su-hija-con-sindrome-rett-otra-manera-sigo-empujando-carro\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Portada","item":"https:\/\/sindromecharge.es\/"},{"@type":"ListItem","position":2,"name":"Josele Ferr\u00e9, cuando la vida es una marat\u00f3n sin fin: &#8220;De otra manera, pero sigo empujando el carro de Mar\u00eda&#8221;"}]},{"@type":"WebSite","@id":"https:\/\/sindromecharge.es\/#website","url":"https:\/\/sindromecharge.es\/","name":"Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge","description":"","potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/sindromecharge.es\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"es"},{"@type":"Person","@id":"https:\/\/sindromecharge.es\/#\/schema\/person\/39a60ebe0a2b4d5a11179701e336b039","name":"Charge","image":{"@type":"ImageObject","inLanguage":"es","@id":"https:\/\/secure.gravatar.com\/avatar\/c3b46e32a0fc3b093a0873fb767bf3293de856293065e84ef06b7ec7a8acfb98?s=96&d=identicon&r=x","url":"https:\/\/secure.gravatar.com\/avatar\/c3b46e32a0fc3b093a0873fb767bf3293de856293065e84ef06b7ec7a8acfb98?s=96&d=identicon&r=x","contentUrl":"https:\/\/secure.gravatar.com\/avatar\/c3b46e32a0fc3b093a0873fb767bf3293de856293065e84ef06b7ec7a8acfb98?s=96&d=identicon&r=x","caption":"Charge"},"url":"https:\/\/sindromecharge.es\/index.php\/author\/admin\/"}]}},"_links":{"self":[{"href":"https:\/\/sindromecharge.es\/index.php\/wp-json\/wp\/v2\/posts\/10463","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/sindromecharge.es\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/sindromecharge.es\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/sindromecharge.es\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/sindromecharge.es\/index.php\/wp-json\/wp\/v2\/comments?post=10463"}],"version-history":[{"count":0,"href":"https:\/\/sindromecharge.es\/index.php\/wp-json\/wp\/v2\/posts\/10463\/revisions"}],"wp:attachment":[{"href":"https:\/\/sindromecharge.es\/index.php\/wp-json\/wp\/v2\/media?parent=10463"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/sindromecharge.es\/index.php\/wp-json\/wp\/v2\/categories?post=10463"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/sindromecharge.es\/index.php\/wp-json\/wp\/v2\/tags?post=10463"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}