{"id":10420,"date":"2024-10-08T05:21:21","date_gmt":"2024-10-08T05:21:21","guid":{"rendered":"https:\/\/sindromecharge.es\/index.php\/2024\/10\/08\/isabel-gemio-mi-hijo-es-mi-motor-mi-maestro-los-peores-momentos-es-el-quien-mantiene-calma\/"},"modified":"2024-10-08T05:21:21","modified_gmt":"2024-10-08T05:21:21","slug":"isabel-gemio-mi-hijo-es-mi-motor-mi-maestro-los-peores-momentos-es-el-quien-mantiene-calma","status":"publish","type":"post","link":"https:\/\/sindromecharge.es\/index.php\/2024\/10\/08\/isabel-gemio-mi-hijo-es-mi-motor-mi-maestro-los-peores-momentos-es-el-quien-mantiene-calma\/","title":{"rendered":"Isabel Gemio: \u00abMi hijo es mi motor y mi maestro. En los peores momentos, es \u00e9l quien mantiene la calma\u00bb"},"content":{"rendered":"

Leemos en Discapacidad la siguiente noticia que os reproducimos de forma \u00edntegra: <\/p>\n

\n

Isabel Gemio<\/a> recibi\u00f3 la peor noticia de su vida hace 25 a\u00f1os, cuando le dijeron que su hijo mayor, Gustavo, ten\u00eda una enfermedad rara<\/a>, incurable y degenerativa: distrofia muscular de Duchenne<\/a>. Ella siempre cuenta que los primeros a\u00f1os estaba \u2018noqueada\u2019 y que era casi incapaz de hablar de ello en p\u00fablico. Hasta que un d\u00eda \u2018despert\u00f3\u2019 y decidi\u00f3 pasar a la acci\u00f3n. <\/p>\n

No solo empez\u00f3 a hablar de ello en p\u00fablico, sino que cre\u00f3 la fundaci\u00f3n que lleva su nombre y con la que se han propuesto apoyar a la ciencia para encontrar tratamientos<\/b> que ayuden a mejorar, no solo la vida de su hijo, sino la de millones de personas que viven con enfermedades similares. Porque, como afirma la propia Isabel, \u00abcuando creas una fundaci\u00f3n, trasciendes tu propia historia\u00bb. <\/p>\n

Queremos impulsar un proyecto para ayudar a buscar tecnolog\u00eda que, con inteligencia artificial, pueda mejorar la calidad de vida de las personas muy dependientes<\/h1>\n

Yo he reconocido muchas veces que tard\u00e9 mucho en reaccionar, me qued\u00e9 anulada personal y emocionalmente mucho tiempo<\/h1>\n

No entiendo c\u00f3mo la sociedad no es m\u00e1s consciente de la realidad que viven estas familias<\/h1>\n<\/div>\n

Fuente: Discapacidad https:\/\/www.20minutos.es\/noticia\/5640781\/0\/isabel-gemio-mi-hijo-es-mi-motor-mi-maestro-los-peores-momentos-es-el-quien-mantiene-calma\/<\/p>\n","protected":false},"excerpt":{"rendered":"

Gustavo, de 27 a\u00f1os, tiene distrofia muscular de Duchenne, una enfermedad gen\u00e9tica, poco frecuente y neurodegenerativa.<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[8],"tags":[],"class_list":["post-10420","post","type-post","status-publish","format-standard","hentry","category-noticias"],"yoast_head":"\nIsabel Gemio: "Mi hijo es mi motor y mi maestro. 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