{"id":10316,"date":"2024-09-17T12:36:15","date_gmt":"2024-09-17T12:36:15","guid":{"rendered":"https:\/\/sindromecharge.es\/index.php\/2024\/09\/17\/nos-reunimos-con-el-secretario-de-estado-de-sanidad\/"},"modified":"2024-09-17T12:36:15","modified_gmt":"2024-09-17T12:36:15","slug":"nos-reunimos-con-el-secretario-de-estado-de-sanidad","status":"publish","type":"post","link":"https:\/\/sindromecharge.es\/index.php\/2024\/09\/17\/nos-reunimos-con-el-secretario-de-estado-de-sanidad\/","title":{"rendered":"El secretario de Estado de Sanidad recibe a Menudos Corazones"},"content":{"rendered":"

Leemos en Menudos Corazones la siguiente noticia que os reproducimos de forma \u00edntegra: <\/p>\n

\n

El 29 de julio, el secretario de Estado de Sanidad,<\/strong> Javier Padilla Bern\u00e1ldez,<\/strong> nos recibi\u00f3 en el Ministerio de Sanidad<\/a> para abordar tres asuntos de especial inter\u00e9s e importancia para los pacientes con cardiopat\u00edas cong\u00e9nitas\u00a0y sus familias: la atenci\u00f3n temprana,<\/strong> la transici\u00f3n a las unidades de cardiopat\u00edas cong\u00e9nitas del adulto<\/strong> y la discapacidad.<\/strong><\/p>\n

Esta reuni\u00f3n con Menudos Corazones comenz\u00f3 a fraguarse tras la Jornada para el reconocimiento, la visibilidad y los derechos de las personas con cardiopat\u00edas cong\u00e9nitas y sus familias<\/a> que organizamos en mayo, en el Congreso de los Diputados,<\/strong> evento inaugurado por Javier Padilla.<\/p>\n

\"\"
De izq. a dcha., Amaya S\u00e1ez, directora de Menudos Corazones; Javier Padilla, secretario de Estado de Sanidad; Marta Medina, nuestra subdirectora; y Chus Montes, responsable de Comunicaci\u00f3n de la entidad.<\/figcaption><\/figure>\n

Estas tres prioridades en las que avanzamos, est\u00e1n extra\u00eddas del Dec\u00e1logo \u2018Menudos Corazones\u2019<\/a>, presentado en el marco de la hist\u00f3rica Jornada celebrada en el Congreso, y centrar\u00e1n nuestros esfuerzos en los pr\u00f3ximos meses, con el objetivo de generar cambios positivos tangibles en la vida de ni\u00f1as, ni\u00f1os, adolescentes, j\u00f3venes y personas adultas con cardiopat\u00edas cong\u00e9nitas.<\/p>\n

Damos las gracias al secretario de Estado de Sanidad por este primer encuentro del que salimos con propuestas que continuaremos desarrollando en beneficio de nuestra causa.<\/p>\n

\u00a1Seguimos!<\/p>\n

La entrada El secretario de Estado de Sanidad recibe a Menudos Corazones<\/a> aparece primero en Menudos Corazones<\/a>.<\/p>\n<\/div>\n

Fuente: Menudos Corazones https:\/\/www.menudoscorazones.org\/2024\/nos-reunimos-con-el-secretario-de-estado-de-sanidad\/<\/p>\n","protected":false},"excerpt":{"rendered":"

En el encuentro, abordamos asuntos de especial inter\u00e9s e importancia para los pacientes con cardiopat\u00edas cong\u00e9nitas\u00a0y sus familias. La entrada El secretario de Estado de Sanidad recibe a Menudos Corazones aparece primero en Menudos Corazones.<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[8],"tags":[],"class_list":["post-10316","post","type-post","status-publish","format-standard","hentry","category-noticias"],"yoast_head":"\nEl secretario de Estado de Sanidad recibe a Menudos Corazones - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/sindromecharge.es\/index.php\/2024\/09\/17\/nos-reunimos-con-el-secretario-de-estado-de-sanidad\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"El secretario de Estado de Sanidad recibe a Menudos Corazones - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\" \/>\n<meta property=\"og:description\" content=\"En el encuentro, abordamos asuntos de especial inter\u00e9s e importancia para los pacientes con cardiopat\u00edas cong\u00e9nitas\u00a0y sus familias. 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