{"id":10248,"date":"2024-08-18T06:06:23","date_gmt":"2024-08-18T06:06:23","guid":{"rendered":"https:\/\/sindromecharge.es\/index.php\/2024\/08\/18\/miguel-angel-pino-con-atrofia-multisistemica-me-dieron-cinco-anos-vida-han-pasado-13-sigo-aqui\/"},"modified":"2024-08-18T06:06:23","modified_gmt":"2024-08-18T06:06:23","slug":"miguel-angel-pino-con-atrofia-multisistemica-me-dieron-cinco-anos-vida-han-pasado-13-sigo-aqui","status":"publish","type":"post","link":"https:\/\/sindromecharge.es\/index.php\/2024\/08\/18\/miguel-angel-pino-con-atrofia-multisistemica-me-dieron-cinco-anos-vida-han-pasado-13-sigo-aqui\/","title":{"rendered":"Miguel Angel del Pino, con atrofia multisist\u00e9mica: \u00abMe dieron cinco a\u00f1os de vida. Han pasado 13 y sigo aqu\u00ed\u00bb"},"content":{"rendered":"<p>Leemos en Discapacidad la siguiente noticia que os reproducimos de forma \u00edntegra: <\/p>\n<div>\n<p>Si cuando a <b>Miguel Angel del Pino<\/b> le dijeron que le quedaban cinco a\u00f1os de vida se hubiera dado por vencido, ASYD no existir\u00eda. Sin embargo, aunque la noticia le dej\u00f3 en shock, no dej\u00f3 de buscar respuestas en otros m\u00e9dicos y, sobre todo, en pacientes como \u00e9l. <\/p>\n<p>No las ha encontrado todas, pero con sus ganas de saber y de ayudar han conseguido, no solo crear la primera asociaci\u00f3n de pacientes de la enfermedad en Espa\u00f1a y Latinoam\u00e9rica, sino dar mayor visibilidad a una enfermedad todav\u00eda muy desconocida incluso para los m\u00e9dicos. Esta labor, que asegura que nunca dejar\u00e1 de hacer, le ha valido uno de los <b>premios sociales de la Sociedad Espa\u00f1ola de Neurolog\u00eda<\/b>.<\/p>\n<h1>Cuando la diagnosticaban, te dec\u00edan que morir\u00edas en cuatro o cinco a\u00f1os, pero se ha visto que eso no tiene por qu\u00e9 ser siempre as\u00ed, sobre todo si sigues unas pautas <\/h1>\n<h1>Si t\u00fa a alguien le dices que no hay nada que hacer, que se va a morir, no lucha. Yo siempre les digo que rendirse no es una opci\u00f3n <\/h1>\n<\/div>\n<p>Fuente: Discapacidad https:\/\/www.20minutos.es\/noticia\/5529926\/0\/miguel-angel-pino-con-atrofia-multisistemica-me-dieron-cinco-anos-vida-han-pasado-13-sigo-aqui\/<\/p>\n","protected":false},"excerpt":{"rendered":"<p>ASYD, la asociaci\u00f3n que preside Miguel Angel del Pino, acaba de recibir un premio por visibilizar la atrofia multisist\u00e9mica.<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[8],"tags":[],"class_list":["post-10248","post","type-post","status-publish","format-standard","hentry","category-noticias"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.4 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Miguel Angel del Pino, con atrofia multisist\u00e9mica: &quot;Me dieron cinco a\u00f1os de vida. Han pasado 13 y sigo aqu\u00ed&quot; - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/sindromecharge.es\/index.php\/2024\/08\/18\/miguel-angel-pino-con-atrofia-multisistemica-me-dieron-cinco-anos-vida-han-pasado-13-sigo-aqui\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Miguel Angel del Pino, con atrofia multisist\u00e9mica: &quot;Me dieron cinco a\u00f1os de vida. Han pasado 13 y sigo aqu\u00ed&quot; - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\" \/>\n<meta property=\"og:description\" content=\"ASYD, la asociaci\u00f3n que preside Miguel Angel del Pino, acaba de recibir un premio por visibilizar la atrofia multisist\u00e9mica.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/sindromecharge.es\/index.php\/2024\/08\/18\/miguel-angel-pino-con-atrofia-multisistemica-me-dieron-cinco-anos-vida-han-pasado-13-sigo-aqui\/\" \/>\n<meta property=\"og:site_name\" content=\"Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/asociacionsindromecharge\" \/>\n<meta property=\"article:published_time\" content=\"2024-08-18T06:06:23+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/sindromecharge.es\/wp-content\/uploads\/2013\/09\/logodecharge300x98.png\" \/>\n\t<meta property=\"og:image:width\" content=\"300\" \/>\n\t<meta property=\"og:image:height\" content=\"98\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"Charge\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@sindromecharge\" \/>\n<meta name=\"twitter:site\" content=\"@sindromecharge\" \/>\n<meta name=\"twitter:label1\" content=\"Escrito por\" \/>\n\t<meta name=\"twitter:data1\" content=\"Charge\" \/>\n\t<meta name=\"twitter:label2\" content=\"Tiempo de lectura\" \/>\n\t<meta name=\"twitter:data2\" content=\"1 minuto\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2024\\\/08\\\/18\\\/miguel-angel-pino-con-atrofia-multisistemica-me-dieron-cinco-anos-vida-han-pasado-13-sigo-aqui\\\/#article\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2024\\\/08\\\/18\\\/miguel-angel-pino-con-atrofia-multisistemica-me-dieron-cinco-anos-vida-han-pasado-13-sigo-aqui\\\/\"},\"author\":{\"name\":\"Charge\",\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/#\\\/schema\\\/person\\\/39a60ebe0a2b4d5a11179701e336b039\"},\"headline\":\"Miguel Angel del Pino, con atrofia multisist\u00e9mica: \u00abMe dieron cinco a\u00f1os de vida. 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