{"id":10122,"date":"2024-06-21T05:34:51","date_gmt":"2024-06-21T05:34:51","guid":{"rendered":"https:\/\/sindromecharge.es\/index.php\/2024\/06\/21\/jesus-martin-director-general-derechos-las-personas-con-discapacidad\/"},"modified":"2024-06-21T05:34:51","modified_gmt":"2024-06-21T05:34:51","slug":"jesus-martin-director-general-derechos-las-personas-con-discapacidad","status":"publish","type":"post","link":"https:\/\/sindromecharge.es\/index.php\/2024\/06\/21\/jesus-martin-director-general-derechos-las-personas-con-discapacidad\/","title":{"rendered":"Jes\u00fas Mart\u00edn: \u00abLa ley ELA es una buena oportunidad para extender derechos a otras realidades como el alzh\u00e9imer o el p\u00e1rkinson\u00bb"},"content":{"rendered":"

Leemos en Discapacidad la siguiente noticia que os reproducimos de forma \u00edntegra: <\/p>\n

\n

El 21 de junio es el D\u00eda mundial de la lucha contra la ELA<\/a><\/b>, una enfermedad generativa que afecta a unas 4.000 personas en Espa\u00f1a. Desde hace a\u00f1os, los afectados reclaman leyes que no acaban de llegar, pero, sobre todo, recursos para afrontar una dolencia que, seg\u00fan avanza, provoca un mayor grado de discapacidad. Mientras llegan, desde el Ministerio de Derechos Sociales<\/b> est\u00e1n desplegando una serie de medidas destinadas a mejorar su calidad de vida, algunas a largo plazo, como poner en marcha centros de referencia o invertir m\u00e1s en investigaci\u00f3n. De todas ellas y otras relacionadas con la discapacidad hablamos con Jes\u00fas Mart\u00edn Blanco, Director General de Derechos de las Personas con Discapacidad.<\/b><\/p>\n

Con Fondos Next Generation, estamos creando ya dos centros de referencia estatal atender a las personas con ELA de manera especializada<\/h1>\n

El art\u00edculo 49 no solo cambia \u2018disminuidos\u2019 por \u2018personas con discapacidad\u2019, supone hace un cambio radical en el abordaje y en la manera de entender la discapacidad<\/h1>\n

Tenemos algunos territorios con hasta dos a\u00f1os de listas de espera para la valoraci\u00f3n de la discapacidad, y eso no es posible<\/h1>\n<\/div>\n

Fuente: Discapacidad https:\/\/www.20minutos.es\/noticia\/5522903\/0\/jesus-martin-director-general-derechos-las-personas-con-discapacidad\/<\/p>\n","protected":false},"excerpt":{"rendered":"

Jes\u00fas Mart\u00edn, Director General de Derechos de las Personas con Discapacidad, nos hablo de las medidas que desde Derechos Sociales han desplegado para atender a pacientes con ELA, de la aprobaci\u00f3n de la ley y de las reformas pendientes de las leyes de discapacidad y dependencia.<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[8],"tags":[],"class_list":["post-10122","post","type-post","status-publish","format-standard","hentry","category-noticias"],"yoast_head":"\nJes\u00fas Mart\u00edn: "La ley ELA es una buena oportunidad para extender derechos a otras realidades como el alzh\u00e9imer o el p\u00e1rkinson" - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/sindromecharge.es\/index.php\/2024\/06\/21\/jesus-martin-director-general-derechos-las-personas-con-discapacidad\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Jes\u00fas Mart\u00edn: "La ley ELA es una buena oportunidad para extender derechos a otras realidades como el alzh\u00e9imer o el p\u00e1rkinson" - 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