{"id":10006,"date":"2024-05-14T05:25:03","date_gmt":"2024-05-14T05:25:03","guid":{"rendered":"https:\/\/sindromecharge.es\/index.php\/2024\/05\/14\/miriam-pinol-con-espondilitis-anquilosante-tener-un-dolor-real-y-que-nadie-te-crea-es-muy-duro-mas-para-una-nina\/"},"modified":"2024-05-14T05:25:03","modified_gmt":"2024-05-14T05:25:03","slug":"miriam-pinol-con-espondilitis-anquilosante-tener-un-dolor-real-y-que-nadie-te-crea-es-muy-duro-mas-para-una-nina","status":"publish","type":"post","link":"https:\/\/sindromecharge.es\/index.php\/2024\/05\/14\/miriam-pinol-con-espondilitis-anquilosante-tener-un-dolor-real-y-que-nadie-te-crea-es-muy-duro-mas-para-una-nina\/","title":{"rendered":"Miriam Pi\u00f1ol, con espondilitis anquilosante: \u00abTener un dolor real y que nadie te crea es muy duro, m\u00e1s para una ni\u00f1a\u00bb"},"content":{"rendered":"

Leemos en Discapacidad la siguiente noticia que os reproducimos de forma \u00edntegra: <\/p>\n

\n

Desde su infancia, Miriam<\/b> ha sido una ni\u00f1a vibrante y llena de energ\u00eda, con una pasi\u00f3n innata por la exploraci\u00f3n y la conexi\u00f3n con la naturaleza. El deporte, especialmente el esqu\u00ed <\/a>y la nataci\u00f3n<\/a>, le proporcionaban emociones fuertes y desaf\u00edos, aunque su verdadera pasi\u00f3n era el dibujo. Con el paso del tiempo, Miriam ha experimentado cambios que la han llevado a sentir que ha perdido parte de esa vitalidad infantil<\/b>. Se encuentra en un momento de b\u00fasqueda personal, tratando de reconectar con su yo m\u00e1s joven. Y es que la espondilitis anquilosante<\/b> que tiene diagnosticada ha cambiado su realidad.<\/p>\n

A pesar de estos desaf\u00edos, Miriam <\/b>asegura que no se rinde gracias a su esp\u00edritu activo y resolutivo. Actualmente, desempe\u00f1a el papel de Community Manager y coordinadora de proyectos y talleres en CEADE<\/b>. Este trabajo le ha permitido descubrirse a s\u00ed misma y expresar su creatividad, habilidades de comunicaci\u00f3n y capacidad de organizaci\u00f3n, y sobre todo, ayudar a los dem\u00e1s<\/b>. Algo que le llena y le completa. <\/p>\n

Charlamos con ella para conocer c\u00f3mo la espondilitis anquilosante<\/b> ha transformado su vida. <\/p>\n<\/div>\n

Fuente: Discapacidad https:\/\/www.20minutos.es\/noticia\/5244867\/0\/miriam-pinol-con-espondilitis-anquilosante-tener-un-dolor-real-y-que-nadie-te-crea-es-muy-duro-mas-para-una-nina\/<\/p>\n","protected":false},"excerpt":{"rendered":"

Desde su infancia, Miriam ha sido una ni\u00f1a vibrante y llena de energ\u00eda, con una pasi\u00f3n innata por la exploraci\u00f3n y la conexi\u00f3n con la naturaleza. El deporte,…<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[8],"tags":[],"class_list":["post-10006","post","type-post","status-publish","format-standard","hentry","category-noticias"],"yoast_head":"\nMiriam Pi\u00f1ol, con espondilitis anquilosante: "Tener un dolor real y que nadie te crea es muy duro, m\u00e1s para una ni\u00f1a" - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/sindromecharge.es\/index.php\/2024\/05\/14\/miriam-pinol-con-espondilitis-anquilosante-tener-un-dolor-real-y-que-nadie-te-crea-es-muy-duro-mas-para-una-nina\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Miriam Pi\u00f1ol, con espondilitis anquilosante: "Tener un dolor real y que nadie te crea es muy duro, m\u00e1s para una ni\u00f1a" - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\" \/>\n<meta property=\"og:description\" content=\"Desde su infancia, Miriam ha sido una ni\u00f1a vibrante y llena de energ\u00eda, con una pasi\u00f3n innata por la exploraci\u00f3n y la conexi\u00f3n con la naturaleza. 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